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Experiences with
Promacta
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In Remission for a year
The first time I had less then 10 for a couple weeks which was brought back to normal with IVIG and
promacta
. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after IVIG and
promacta
.
The first time I had less then 10 for a couple weeks which was brought back to normal with IVIG and
promacta
. I was on medication for a month then none at all. Platelets went back to normal for 14 months before less then 10 again. Shorter time to return to normal 2 weeks after IVIG and
promacta
.
joecirillo
in
ITP Support Association
9 months ago
covid vaccine
It took about 3 weeds of
promacta
and on IVig treatment to get them back to normal where I have remained for the last 10 months. So I do not want to mess that up by taking the vaccines again even though my hematologist is not sure that is what trigger a reccurence.
It took about 3 weeds of
promacta
and on IVig treatment to get them back to normal where I have remained for the last 10 months. So I do not want to mess that up by taking the vaccines again even though my hematologist is not sure that is what trigger a reccurence.
joecirillo
in
ITP Support Association
1 year ago
Covid-Induced ITP Recovery Questions
All these weeks later (October now), I've discovered I'm steroid resistant (dexamethasone and prednisone seemingly did nothing for me), and
promacta
(which I've been on for over a month) doesn't seem to be doing anything noticeable for my counts.
All these weeks later (October now), I've discovered I'm steroid resistant (dexamethasone and prednisone seemingly did nothing for me), and
promacta
(which I've been on for over a month) doesn't seem to be doing anything noticeable for my counts.
thestrugglebus
in
ITP Support Association
2 years ago
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Good news and Bad news?
So do I start treatment - likely A only, A&V, or V&G, or A&O, or O&V (Gazyva is not recommended if platelets are less than 70K) - or do I try to deal with platelets with Rituximab, prednisone and IVIG and possibly Dexamethazone and kick the can down the road again on W&W, or
PROMACTA
or simply try some
So do I start treatment - likely A only, A&V, or V&G, or A&O, or O&V (Gazyva is not recommended if platelets are less than 70K) - or do I try to deal with platelets with Rituximab, prednisone and IVIG and possibly Dexamethazone and kick the can down the road again on W&W, or
PROMACTA
or simply try some
bertie260
in
CLL Support
2 years ago
Long term prednisone use
My hematologist has tried
Promacta
and prednisone. When my prednisone dosage was down to 5 mg with 75 mg of
Promacta
my platelet counts tanked. Presently I am on NPlate and 10 mg of prednisone. Has anyone who has taken long term prednisone have it start to effect other organs in the body.
My hematologist has tried
Promacta
and prednisone. When my prednisone dosage was down to 5 mg with 75 mg of
Promacta
my platelet counts tanked. Presently I am on NPlate and 10 mg of prednisone. Has anyone who has taken long term prednisone have it start to effect other organs in the body.
hiltonhead
in
ITP Support Association
2 years ago
Covid Shot or No Covid Shot. That is the question!
A year later I now have Chronic ITP and am on 75 mg of
Promacta
. My platelet levels are in the normal range now. I was advised by my doctor not to get my second Covid 19 shot.
A year later I now have Chronic ITP and am on 75 mg of
Promacta
. My platelet levels are in the normal range now. I was advised by my doctor not to get my second Covid 19 shot.
hiltonhead
in
ITP Support Association
3 years ago
Headaches
The doctor now has me on a combination of
Promacta
50 mg along with10 mg of prednison. After two months of this combination I am still running low so the doctor now has me on 75 mg of
promacta
with the same amount of predinson.
The doctor now has me on a combination of
Promacta
50 mg along with10 mg of prednison. After two months of this combination I am still running low so the doctor now has me on 75 mg of
promacta
with the same amount of predinson.
hiltonhead
in
ITP Support Association
3 years ago
Plavix and ITP
Eventually with IVig treatments and
promacta
they went up to 202. At the point that I am hoping it was still the Plavix that caused it and it will just go away.
Eventually with IVig treatments and
promacta
they went up to 202. At the point that I am hoping it was still the Plavix that caused it and it will just go away.
joecirillo
in
ITP Support Association
3 years ago
Advise - hair get thinner ( eltrombopag, promacta)
I just start eltrombopag (
promacta
) 25 mg /day three weeks ago. I can see my hair get thinner, I have fine hair. Anyone can give me an advise what can I do (any vitamin or hair products.... etc) will help?
I just start eltrombopag (
promacta
) 25 mg /day three weeks ago. I can see my hair get thinner, I have fine hair. Anyone can give me an advise what can I do (any vitamin or hair products.... etc) will help?
Beaconshire1624
in
ITP Support Association
4 years ago
Splenectomy or other options?
He has been on
promacta
for the last several years also has had many ivig transfusions. He is currently at the highest dose of
promacta
that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
He has been on
promacta
for the last several years also has had many ivig transfusions. He is currently at the highest dose of
promacta
that is FDA approved for kids which is 50mg. Insurance will obviously not cover a higher dose.
RJanna
in
ITP Support Association
4 years ago
ITP cured after parasites eradicated
It has been about 2.5 years since needing to do
Promacta
, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP.
It has been about 2.5 years since needing to do
Promacta
, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP.
CDmom
in
ITP Support Association
4 years ago
Did anyone experience severe headaches with Promacta?
I was wondering if anyone else experienced these types of headaches when they were on
Promacta
. And if so, did you ever get used to the headaches or did you have to stop taking
Promacta
.
I was wondering if anyone else experienced these types of headaches when they were on
Promacta
. And if so, did you ever get used to the headaches or did you have to stop taking
Promacta
.
Milkycowow
in
ITP Support Association
4 years ago
japanese have a drug for i t p
.. hey i will try anything to get away from our nite mare .. on 75 mg. of
promacta
( the max ) and steady at 50k . b4 i was on 50mg. and declining and scared. there is no way to take 100mg. it will kill you .. thanks everyone and we all pray for a cure ..
.. hey i will try anything to get away from our nite mare .. on 75 mg. of
promacta
( the max ) and steady at 50k . b4 i was on 50mg. and declining and scared. there is no way to take 100mg. it will kill you .. thanks everyone and we all pray for a cure ..
rizzo1018
in
ITP Support Association
4 years ago
anyone had their spleen removed
suffering with I T P for the past 3 years and seriously considering spleen removal . i know there is no guarntee it will work but if it does no more prednisone and the 75mg.
promacta
i am taking .. i know there is a test to determine if the spleen is killing off the platlekets so my logic is to have
suffering with I T P for the past 3 years and seriously considering spleen removal . i know there is no guarntee it will work but if it does no more prednisone and the 75mg.
promacta
i am taking .. i know there is a test to determine if the spleen is killing off the platlekets so my logic is to have
rizzo1018
in
ITP Support Association
4 years ago
ITP SPLENECTOMY vs
In Australia I am unable to access any of the ITP drugs such as
Promacta
/Eltrombopag etc unless I have had a failed splenectomy. I am now considering splenectomy as I have run out of options & sitting dangerously low. Does anyone have any suggestions??
In Australia I am unable to access any of the ITP drugs such as
Promacta
/Eltrombopag etc unless I have had a failed splenectomy. I am now considering splenectomy as I have run out of options & sitting dangerously low. Does anyone have any suggestions??
Jesse150
in
ITP Support Association
4 years ago
I need a little clarification...
I know
promacta
12.5mg and vit D are keeping me around 80. Any thoughts?
I know
promacta
12.5mg and vit D are keeping me around 80. Any thoughts?
Georgiagirl61
in
ITP Support Association
5 years ago
bone marrow trans plant ?? cure ??
was doing fine for a year on 50 mg.
promacta
then all of a sudden I am tanking back into the 20s .. bumped it up to 75mg.
promacta
and see what happens .. none of those ugly symptoms yet ?? waiting ?? jimmy
was doing fine for a year on 50 mg.
promacta
then all of a sudden I am tanking back into the 20s .. bumped it up to 75mg.
promacta
and see what happens .. none of those ugly symptoms yet ?? waiting ?? jimmy
exxxon
in
ITP Support Association
5 years ago
Vit D
I take
Promacta
15 mg and it is holding me somewhere between 50 and 80. Everyone seems O.K. with that. A couple of months ago, a few posted that vitD helped their numbers, so I tried that on top of my
promacta
.
I take
Promacta
15 mg and it is holding me somewhere between 50 and 80. Everyone seems O.K. with that. A couple of months ago, a few posted that vitD helped their numbers, so I tried that on top of my
promacta
.
Georgiagirl61
in
ITP Support Association
5 years ago
NEED A CURE
I am on 50mg. of
promacta
and it keeps me in the low 40s .. so gratefull for that ………………………. from clearwater florida and in the Philippines currently . they have me drinking tawa tawa and it does zero , it boiled grass . will try anything ……………… b-12 / folic acid /vitamin k / also zero results ..
I am on 50mg. of
promacta
and it keeps me in the low 40s .. so gratefull for that ………………………. from clearwater florida and in the Philippines currently . they have me drinking tawa tawa and it does zero , it boiled grass . will try anything ……………… b-12 / folic acid /vitamin k / also zero results ..
exxxon
in
ITP Support Association
5 years ago
Revolade started taking from 11th oct 2019
Is anyone taking revolade known as eltrombag
Promacta
Revolade Eltrombag
Is anyone taking revolade known as eltrombag
Promacta
Revolade Eltrombag
Platelet4000
in
ITP Support Association
5 years ago
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