My Journey of ITP So Far...

[M_Umar]

Dear all purpose of sharing my journey is to help or guide others (specially new patients of ITP). I am sharing this to give a ray of hope to ITP Patients.

Officially I was diagnosed as an ITP patient in November 2015 after excluding all other possible causes of low platelets ( refused for Bone Marrow Biopsy, still yet confused that Bone marrow is good or not? ). I even did not heard this disease before November 2015.

After diagnoses, me and my family remained worry a lot. I visited different doctors as well as spend maximum time on internet for the possible treatment of ITP. In my opinion I got maximum knowledge about ITP from internet instead of Doctors.

In November 15 after two times transfusions ov platelets within 48 hours, doctors shifted me on high dose of steroids. And I remained on steroids around 6 months. On high dose of steroid my platelets become normal but on low dose, platelets dropped again. After 3rd time relapsed in March 16, Doctors decided to treat me by using next step of medicines but I refused to take any treatment and decided to Give a Chance to NATURE.

And I started taking Vitamin C tablets 1000 mg per day after breakfast as well as one glass of Alo vera juice in the night, though I do not know how to take it properly because no one guide me about it. As well as I try to follow diet plan according to my blood group (B+, D’Adamo, P.J., Eat Right for Your Type)

. It helps me a lot in the start.

Now on and off I take some multi vitamin tablets else only exclusion ov chicken from my diet I feel much better. Still yet I am facing side effects of steriod (Un Controlled Blood Pressure). Also tried my best to avoid Anti-Bio-Tics, they really drop my counts.

I tried Papaya leaf extract as well but it reacted and my platelets dropped by using it. In my opinion every body is different and each one react differently on a specific remedy.

But in my opinion if you are not a heavy bleeder then you may try to treat your disease naturally. In the end ALLAH knows better. I wish that a day come when Doctors find the solution of ITP (fingers crossed).

For any further query feel free to contact on 00923214465253 or [e-mail].

[AWSAR]

which steroid u used ? and what was the max count u achieved by using steroids? . my counts never rose. i used steroids for six months . along with heavy medicine. but my counts never changes

[M_Umar in reply to AWSAR]

I used Deltacortail, counts vary on dose I took.

[schattenberg]

Aloha, I had platelets transfusion because my count dropped from 234,000 to 14,000. Had several pints, and the last dose was steroids.Left Hospital with 94,000 count. After I got home took Blakseed oil, tbl spoon at breakfast and dinner. Count went up to 160,000. Then last week dropped to 16,000. Dr suggested steroids. I changed my diet, drink aloe vera. Make papaya tea from fresh papaya leaves. Eat leafy green veggies. Count went up in jyst 3 days to 22,000. Try narural, monitor your count. Everyone's body chemistry is nit the same. Side effects of steroids alone is scary.

[wjoyful in reply to schattenberg]

Is it black seed oil. I tried to look for blakseed but nothing comes up.

[wjoyful in reply to wjoyful]

I found the black seed oil. I'm taking papya leaf extract and aloe Vera juice. I noticed my gums have stopped bleeding at night. I get my blood done this Friday coming so I hope my platelets went up. Onward and upward. 😁

[M_Umar in reply to wjoyful]

Please update us about blood report and any positive change due to change of diet?

[schattenberg]

Changed way of eating, green leafy vegetables, kale,broccoli,spinach,cucumber,avocado,papaya, make tea from boiled papaya leaves,cool off tea and drink 1 cup on empty stomach, in the morning and 1 cup before bed. That is my experience, count went up steadily now at 117,000 off of prednisone..I know every body is different. The side effects of prednisone were bad for me. Hairloss, blurry vision, forgetful. Not anymore, hair growing back, clear headed now. Hope and pray it stays that way.