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ITP Support Association
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Diagnosed with ITP and need help with tapering my prednisolone

Hello everyone

So I was diagnosed with ITP a month back

I just did a random CBC test and my platelets were low so the doctor immediately admitted me in the hospital and I was there for a week, they did my bone marrow aspiration which turned out Normal also all my Ana tests were negative hence the doctor came to conclusion that it was just ITP and there is no underlying autoimmune disorder

So I was put on 40mg prednisolone my platelet count went up to 80000

it's been a month now and doctor has started off taper the dose right now I'm on 20mg and have to again get tested on Friday to see if my platelets are still stable

My question is how long before I can be completely off prednisolone and how long does it take to completely recover from the side effects

Are there any precautions I need to take whole coming off?

19 Replies
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Please look at the connection between ,TIP and depression. It's massive . You do not havecto suffer. When you dont have platelets your body can not back seratonin . Good luck Cx

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Yes suffering is there without doubt but let's work on how to minimise it

If you can shed light on that it will be great

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Hello, Homeopathy will help.

Regards

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Thanks fog replying Asim kumar

Have you tried homeopathy treatment if yes how effective it was and the duration

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Hi Harshankolekar,

I swear by papaya leaf juice and try to take it on a daily basis. (It is very expensive for Canadians and I occasionally run out .) Whenever I have large (and small) bruises it seems to clear them up much more quickly than when I don't/can't take it. I have taken it in greater amounts recently and it seems to be working. My platelets went from 19 to 55 in spite of Christmas indulgences.

Good luck

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Wow that's so good to hear Sharon

Papaya leaf juice is really very cheap back here in India and easily available.

I will surely try and consume it on a regular basis

Thanks for taking time out to reply

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But papaya leaf juice is not scientifically proven to improve the plaletlets count as per my knowledge

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I am on homeopathy treatment from 20dec18. My platelets count was 34000.

On 25dec18.. Platelets rose to 65000.

No PREDNISOLONE since 17DEC18.

Currently on ELTROMBOPAG 25mg every alternate day.

Platelets as of yesterday 65000.

Homeopathy is working for me.

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Wow that is really good news Asimkumar

I will surely look for homeopathy doctors who can help me out with it

Wishing you a super recovery

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Hi Asim ..

Good to hear that treatment is working for you .. can you please inbox ur mobile no ? My daughter is recently been diagnosed . I would like to know some info regarding this

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9449564070

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Thank you Asim kumar

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Hi. Eltrombopag is Promacta. I can't speak to the papaya, but Promacta shot my platelets up. I am still on it, so I don't know if it will hold. It is not homeopathic.

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Hi,

My story is very much like yours. Through a random blood test in the military I was diagnosed with ITP. A platelet count of 5,000. I did the prednisone treatment. It is very important to come off of the prednisone slowly. Side affects from coming off too fast can be a significant problem. Please take the time and let the doctors manage the lowering of the dosage. The side affects last for some time. The major side affects like weight gain will go away fairly quickly but to truly get your energy back will take longer.

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Thank you so much for replying robert

Yes I'm doing exactly what the doctor has suggested and tapering slowly and gradually, major sides are muscle weakness and a lot of acne yes and the sleep also gets affected

But I'm trying to naturally boost my adrenal function so that side effects are minimised and recovery is quick

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I'd recommend checking out the pdsa.org/discussion-group site, it has more useful topics than this site

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Yes I did have a look the the site you mentioned

Thank you

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In my case, and depending on how well the platelets level hold, they reduce 5 mg of prednisone weekly. You have to be careful not to taper it to fast because platelets may drop and your renal glands need time for the adjustment. The time it takes to recover from the side effects depends on how long you were on the drugs and the dosage. Also, not everyone gets the same side effects. In your case I would think that in a couple of months you should be back to normal, because you didn't take it for too long and the dosage was relatively low. Take care of what you eat and avoid salt.

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Thank you so much

I have been on it for a month now

40mg is what I took and now I'm already on 20mg since past 5 days and feeling OK

Getting a CBC done tomorrow to check how are the platelets responding

Also any other specific diet advice which would be helpful?

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