My first dvt was due to a port - My jugular completed clotted off, as well as all veins in my left arm filled with clot. I was treated with warfarin for 3 months. Port was removed.
2 weeks after warfarin stopped I clotted again in the same arm. Put back on warfarin.
3 months later I clotted in the other arm on therapeutic warfarin. INR Range was raised.
A few years later I clotted back in the left arm, on therapeutic warfarin in
the higher range. Ultrasound also showed chronic clot that was not previously there - believed to have clottted on and off without knowledge.
A year later I developed a PE, and was eventually found to have had clots in both transverse sinus veins in the brain. I was then placed on Arixtra. Two years later I had my recent clot in a different vein in the left arm. This frightens me as on I've had clots in varying location within 6 years, and on what is to be believed to be sufficient treatment.
The plan is to continue on the 2.5mg Arixtra dose I clotted on. Are there other treatment options for people with APS? I've also developed severe joint pain around the time this last clot formed in addition to autoimmune GI-flare. Basically, a whole lot of inflammation at once. I do have migraines, but these as of now are under contorl. I don't want to continue clotting on treatment. Any references to information I could pass along to my doctors would be helpful. They are not particularly familiar with many Hughes Syndrome cases.
Do you automatically get tested for APS if you have a clot ?
Anniversary 
Angiogram anyone?
Is warfarin not the med for aps anymore...if not what other anticoagulants do they give?
