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Update on my appointment with Haematologist

So he said I had choices, Warfarin, but given my stomach problems, probably not a good idea, Fondaparinux (Arixtra) injection, or as he preferred, remain on Heparin for another 3 months, then see about transitioning to Arixtra injections, he is suggesting the latter as there is even lesser a risk with
So he said I had choices, Warfarin, but given my stomach problems, probably not a good idea, Fondaparinux (Arixtra) injection, or as he preferred, remain on Heparin for another 3 months, then see about transitioning to Arixtra injections, he is suggesting the latter as there is even lesser a risk with
LupusKaren profile image
LupusKaren
in Hughes Syndrome APS Forum

Lifetime Therapy of Warfarin at 10 milligrams a day since 2011. I have a Genetic Disorder Protein S and C deficiency

I push through every day fighting fatigue, tiredness, easily bruised, healing very slowly, I have to go to my hematologist sometimes every week, twice a month has been few and far between as I have had to bridge over the warfarin for so many surgeries or procedures with Arixtra shots in the stomach
I push through every day fighting fatigue, tiredness, easily bruised, healing very slowly, I have to go to my hematologist sometimes every week, twice a month has been few and far between as I have had to bridge over the warfarin for so many surgeries or procedures with Arixtra shots in the stomach
robinbird profile image
robinbird
in Anticoagulation Support

Huhghes Syndrome and a whole lot mine!

Tried Lovenox and Arixtra and got 2 cases of H.I.T. Beem doing 4 shots, 28 per week of Iprivask. I am always nauseas. I shave my body and only wear a tank top and shorts. I am unable to controlmy body temperature. I always turn beet red and have to be near air conditioning. My memory is going.
Tried Lovenox and Arixtra and got 2 cases of H.I.T. Beem doing 4 shots, 28 per week of Iprivask. I am always nauseas. I shave my body and only wear a tank top and shorts. I am unable to controlmy body temperature. I always turn beet red and have to be near air conditioning. My memory is going.
cleanerug profile image
cleanerug
in Hughes Syndrome APS Forum
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Anti phospholipid antibody with Hemorrhagic disorder

I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense, my doctor has recommended possibly switching to Rivaroxaban. I am a little nervous to change what I know is working. Camie
I have a rare blood disorder and I inject Arixtra(Fondaparinux) at this time. Heparin and Agatraban both had the opposite effect on me. Due to the expense, my doctor has recommended possibly switching to Rivaroxaban. I am a little nervous to change what I know is working. Camie
Coblondie13 profile image
Coblondie13
in Hughes Syndrome APS Forum

Starting Arixtra and coumadin today...

About 2 1/2 years ago I tried lovenox and felt very agitated and uncomfortable on it should I expect similar side effects from the Arixtra? Has anyone taken Arixtra that can tell me what their experiences have been? Thanks, Jen
About 2 1/2 years ago I tried lovenox and felt very agitated and uncomfortable on it should I expect similar side effects from the Arixtra? Has anyone taken Arixtra that can tell me what their experiences have been? Thanks, Jen
Mom3mmc profile image
Mom3mmc
in Hughes Syndrome APS Forum

Newly Diagnosed

I am on Arixtra injections daily for at least 3 months. I was just diagnosed with Primary Antiphospholipid Syndrome. I already have Fibromylagia and Chronic Fatigue so the brain fog and fatigue is nothing new for me. Any advice from those who have had this longer?
I am on Arixtra injections daily for at least 3 months. I was just diagnosed with Primary Antiphospholipid Syndrome. I already have Fibromylagia and Chronic Fatigue so the brain fog and fatigue is nothing new for me. Any advice from those who have had this longer?
Hidden profile image
Hidden
in Hughes Syndrome APS Forum

Do all the aps symptoms disappear with proper anticoagulation mess?

Also, anyone here on arixtra instead of warfarin? My hematologist says arixtra is more powerful.
Also, anyone here on arixtra instead of warfarin? My hematologist says arixtra is more powerful.
Calico profile image
Calico
in Hughes Syndrome APS Forum

No symptom relief

Currently on 2.5 mg arixtra, low does aspirin and plaque nil. Yet, no relief. Doctors have no more tests to perform. I'm searching for best U.S. Medical center to get help. Looks like Duke is highly rated for APS from cooments on this site.
Currently on 2.5 mg arixtra, low does aspirin and plaque nil. Yet, no relief. Doctors have no more tests to perform. I'm searching for best U.S. Medical center to get help. Looks like Duke is highly rated for APS from cooments on this site.
Calico profile image
Calico
in Hughes Syndrome APS Forum

Help for clotting on multiple anticoagulants...

I was then placed on Arixtra. Two years later I had my recent clot in a different vein in the left arm. This frightens me as on I've had clots in varying location within 6 years, and on what is to be believed to be sufficient treatment.
I was then placed on Arixtra. Two years later I had my recent clot in a different vein in the left arm. This frightens me as on I've had clots in varying location within 6 years, and on what is to be believed to be sufficient treatment.
StarryUkulele profile image
StarryUkulele
in Hughes Syndrome APS Forum
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