Hi I am wondering if the doctor's automatically test for APS if you have blood clots ? I have had SLE for 14 years , I had a dvt in my brain 3 months after a brain tumour op , had a massive seizure which I think was a mini stroke then was told I had the clot and was put on warfarin which was stopped after 18 months even though the clot was still there and always will be . I got another large clot in my groin when in hospital recovering from meningitis and so was put back on warfarin for life . Noone has ever said I have APS but I have read about some of the symptoms and think I might have it I am particularly worried about bad memory and brain fog . Warfarin clinic just have me down as recurrent dvt . I did always have a lot of headaches but for the last few years haven't really suffered and was wondering if they have gone due to warfarin although warfarin nurse said warfarin would not stop headaches I heard it can if they were caused by APS. Also I believe it is common in lupus patients or people with other autoimmune diseases . Any advice would be appreciated, I am going to discuss this with my gp on Dec 1st mainly to check if I have ever been tested for it .
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