Update, missed you all.: Hi everyone... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Update, missed you all.

Suzypawz profile image
11 Replies

Hi everyone, sorry for not being on here much.

I've been having trouble with our internet?? I start to write posts & do stuff on comp' & it cuts me off!!! it's been doing that for a couple of weeks or more!

Last week I have been to a festival in Wales too & then we stayed over for a couple of days which I really felt I needed too! : )

Had results back from scan.....organs all good which is great news........& they dont know the reason still for the pain I am still in??!

So she's made me an appointment to see a surgeon to discuss it further?

They did find a large polyp though which they want to remove from my womb ( sorry guys :( ) they say that may have been what has been causing some of the other stuff I have been getting.........

They have also found a specialist that knows about APS in Derby which is only 20 mins away from me which could be very usefull....

So some great news but I am also left with a huge ? still over what is going on with me :( :)

I have missed 'talking' & 'listening' to you all, been thinking of you all lots, hope you all ok & I hope this internet lets me pop on again soon.......I'd best save & post this quick before I lose this one too!!!!!!!

Hugs to all xx

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Suzypawz profile image
Suzypawz
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11 Replies
jetjetjet profile image
jetjetjet

dearest princes- sounds like you are moving forward with all that is going on. hope that the other pic's i sent did in fact arrive? if not than i will re-send them for you. i am getting better at this- but still a work in progress- new camera , Kristina is helping me with it :-) should produce lots better pic's-- time will tell- thinking of you often- you and our jess-- will call you in a.m. my time----- missing you both very much -- your humble pic student ---- jet

Suzypawz profile image
Suzypawz in reply tojetjetjet

Hi jet, yes ta I recieved the other pics........I thought I'd sent a reply message??.....duh probably did it wrong & never sent it knowing me at mo'!!! :/

Keep taking those pics it's great to see your country too :)

Hope you are well bud, Sue :)

pluto5 profile image
pluto5

Hi there! I get trouble all the time with my laptop. Mostly not responding or freezing. Not exactly APS but any suggestions how to make it right? I spend hours doing almost nothing!

Suzypawz profile image
Suzypawz in reply topluto5

It normally means your comp' maybe needs emptying of some stuff ? I know I empty bin & defrag every couple of weeks.....especially if comp' goes slow or 'freezes', but mines been internet access recently through AOL,I'm on phone writing this & its taking me forever!!

SueLovett profile image
SueLovett

Hi Suze,

Really pleased to hear from you I was getting worried and had made up my mind to call you tomorrow to see if you were Ok.

Sorry they haven't found out what is causing pain but at least you are being listened to at last.

Hope all the babies are well Lots of Love Sue

Suzypawz profile image
Suzypawz in reply toSueLovett

Hi hun :) nice to hear from you, feel free to call me anyway! :)

Missed our chats!!

I'm sure I'll be ok, it's just I feel deep down there's something not right? I'm probably just paranoid due to mistakes & wrong diagnoses in past?!!

Most of furry critters ok ta, few Degus been poorly & don't know why? I'm thinking it may have been a dodgy water bottle whilst I was away? :(

Hope to hear from you soon & I hope you're well xx

MaryF profile image
MaryFAdministrator

What an uplifting message. and great you are back. Hope the trips made things a bit better, I know my adventures keep me uplifted and amused which helps greatly with pain in my own opinion. Great to have you back on board. Mary F x

Suzypawz profile image
Suzypawz in reply toMaryF

Thank you hun :)

Yep I'm back!! As long as my comp' allows me!!! or I'll have to continue to struggle to write these mesages from my phone!! This isn't easy you know :) I managed to put images on facebook for everyone from gig then it switched me off again! Then it let me eventually write the odd message then it switched me off again!b it been like that for ages now....frustrating !

Hope your ok xx

Hi Sue

Nice to have you back on circulation - you've been through the mill a bit so hope you start to perk up again :)

Mmm - APS expert in Derby - can you let me know their name please as I am building a directory which will be going online with the new website.

Glad you're around again,

Kxx

Suzypawz profile image
Suzypawz in reply to

I'm sure her name was Dr.Regan....thank you for your words :)

I'm wondering if it was the same one that was at London? her name was Prof. Lesley Regan? wasn't it? I didn't think to ask whilst at docs if she knew.......duh!

I'm here but on & off with the router keep switching me off still!!! xx

Suzypawz profile image
Suzypawz

The pain left me in tears again today :( so sick of it, just rying to get on & wether I do nothing or do stuff, if I eat or don't eat it still hurts!

It's really tiring me out.....I just keep getting that horrid that I just know there is something wrong?? I know my doc' is doing everything she can to help & I cant ask any more from her.....I suppose I've just got to wait & see what the surgeon thinks ....... but when she said that the scan I had wouldn't show everything up ( e.g. hernia as I'd suggested?? ).........I got worried then.....thinking ok what if it hasn't shown up whatevers going on then?..................

Oh I don't know what to think........I feel like I'm going out of my mind :( I'm sorry I'm on a downer at mo' I'll try to use my boots2moz :)

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