Hello again to everyone,
The specialist from the Portland OHSU called me with the new results of the blood draws that they did a week ago Tuesday. I'm beside myself with the news, I need to fully understand what the Doctor is telling me, yet he said the three specific blood tests that determine APLS, the main one that showed the result read 67.5 and when I first was diagnosed a few years ago I was over 50 also and remained that way even when they took me off the Warfarin to see how my blood reacted and to take blood without the Warfarin in it, in order to determine if the Warfarin would be life long. At that time a few years back, the hematologist at oncology at St Charles gave the firm diagnosis and also sent me to another specialist which did another strain of blood tests diagnosing me with APLS and Lupus non specific. When I came into the Portland OHSU last week, the specialist had viewed my charts sent from where I live, a few hours away and stated all the symptoms and the history work up and the results of the doctors here and agreed it was APLS w/Lupus non specific. Well, new blood results state now that my blood is down to a 6.5....WOW SERIOUSLY! I sat on the phone shocked, excited, baffled and asking so many questions. He stated that "my body is healing itself", he also said that he feels that in three months they will be taking me off of Warfarin and erasing the diagnosis. Has anyone had this happen please share please share?
I dont know any of you on a personal level outside of this forum, yet I have to give hope because I have been so terribly sick and have a history of miscarriage, ectopic pregnancy and years of off and on body struggles that ended in severe hemorrhaging while in India when I was in the mission field three years ago only to have a severe Pulmonary embolism that almost took my life and DVT in my legs. The specialist stated specifically that there were so many things that led to this diagnosis considering I was in India and had to fly back after the first hemorrhage which was a 19 hour flight, yet this alone is not what could have caused such a trauma. Blood tests are the determining factor. Mine have been clear cut according to all he doctors until now. How does APLS go away? Does anyone know?
The specialist has asked me for more scans and tests through the next three months to further learn and build the results, yet he stated the significant drop from the last blood draws which were only two months ago, my body is indeed healing itself. I have so much faith in God and know that healing is real, I serve in missions and have dedicated my life to ministry, I believe this to be another baffling miracle. Since last Friday I the pain has ceased and I feel almost back to my full self in many ways. The doctor stated that all the symptoms, pains etc have been from the level of trauma/injury from the PE and DVT's and blood filled cysts. He stated the recovery time from a Pulmonary Embolism is very real and lengthy laced with much pain. I feel like the heaviness in my heart is leaving from carrying the wonder that comes with this disease. I hope to have a full report with more details for everyone to share. I also have found so many helpful aids to feeling better since I was diagnosed. I would like to share the tea's that I drink, the fluid intake and the vegetarian diet that allows fish and eggs also if anyone is interested. I feel better with eating clean and with heavy fluid intakes. The Indian organics that I also take I believe have helped along with Acupuncture and first and for most, my faith in God. I have sat and had communion sometime daily when the pain levels get too high or I get sick form a virus, pneumonia. I have chosen to stay away from any kind of pain meds and have only adhered to Warfarin. I take 7.5 ml a five days a week then half a pill two days week. I have kept my body very organic and have even denied tylenol most always. I have not used birth control ever in my life until they tried to stop my blood monthly for only three weeks prior to the PE. I have kept a modest weight and am a workaholic and typically a very joyful, purpose filled person. I love my lifeswork at the mission that my sons and I built thirteen years ago. I serve over 4000 people a year that are in need plus global mission work. I know that God is healing me, I also know I have taken good care of my body, I also know that I have had good care in the medical field and believe in miracles in medicine also. So for anyone out there that is reading, I know there is hope and I am praying to give full report with documentation from the doctors to show the firm results of this journey coming to an end. I would also like to hear from anyone that has experienced this as I am seeking answers as I have not heard of APLS disappearing? Not remission states but literally disappearing. Thank you to everyone on this forum that continues to support and share, it has helped me tremendously. I would not have gone to OHSU if it was not for this forum.
Peace, joy and hope