Hello again! I finally had the endoscopy on Tuesday and was told I have a large ulcer probably from the NSAID I've been taking for years for osteoarthritis. Also, while the tummy stuff was going on my right hip started giving me a lot of trouble. Not moving properly, severe pain in the groin and outer thigh. All started early December and by February I could no longer walk my big dog or move freely. Getting in and out of chairs (all I do at work all day in Kindergarten), bending down causes pain. It all came on so very fast and go so bad very fast. I've been using a cane for 2 weeks but it's not helping at work so I bought a wheely walker to try next.
When I don't know who to go to for a doc I always make an appt. with my neurologist because he is so wonderful at diagnosing my weird stuff and I've been with him for almost 20 yrs. now (I tell him I've known him since he had hair and he chuckles). I had an MRI done of my hips and it was the most awful test I've ever had because the pain in my right hip and leg from laying there still was so unbearable I asked for the test to stop so I could get up and move (I'm no wimp either but it was horrible). I saw the neuro a couple days later and it now turns out that I have what is called AVN (avascular necrosis) in both hips (femoral heads) - meaning they aren't getting any blood flow from inside the bone and are dying. I am needing a total hip replacement on the right now at age 53 and will need the left done when the pain moves over there. I do not know if the lack of blood flow inside the bone is related to the APS since I mostly clot in big arteries.
So here we go on another adventure. I go to see a private orthopedic surgeon on Thursday and hope he will help me even though I'm on the blood thinners for the APS. It's been a big deal before but hopefully now things have changed.
Will keep you updated! Everyone hang in there please. I've gone for almost 10 years now without any major APS stuff happening (strokes, PAD, etc.) It does level off sometimes. Just take each thing as it comes and get as much info as you can and keep in close touch with the group for support. It works for me and it will for you. Will ask all who pray to throw in a few for me about this ulcer healing and the hip issue (I'm in a great deal of pain). I pray for all of you too. Hugs, Laurey