Sorry I've been away for so long. Just thought I'd come bouncing back on here to update you all - let you know I'm still alive etc!
So how are you all? I am feeling particularly cheerful - I think it's because the sun is out and I have started running again... I really feel like I am looking after my body a bit better! So this morning at 5.45 I was out running with my muttos! Happy days - definitely not so much fun in the winter!!
I don't really have any health news - which in itself i a great thing... My horrid colposcopies are down to annually, my skin is still cancer free, my transplant (Kevin) is going to be 9 this year - where does the time go???, I am still injecting clexane... And can you believe that I was diagnosed over 13 years ago!?
in real life (that is, not work!!) I am still working (very) full time for a consultancy in London, I walk the dogs for about 1.5 hours a day, my horse retired but I am having dressage lessons, I have started running again, I am seeing a chap who is mad keen on bikes so I might be doing some of that... I have just got back from holiday in Egypt; diving, snorkelling, quad biking, star gazing, walking about in the mountains... I'm hoping to go to Naples later in the year to learn how to make real pizza and sail round the islands... to put it simply - I feel back! and I'm so excited about it.
I hope you are all well and happy - I would love to hear from you.
I would love to talk more about my travels and adventures but I'm not sure that this is the right forum - I would love people to know that you CAN do all this stuff - maybe not now, but if you work towards your goals you really can do anything!
Tx
that's my friend Lawrence
mine's better! haha
Thanks
Tx
Hey Tasch! Glad to hear you're feeling back to your old self - goes to show that we can all 'peak and trough' - it's great when you peak again
You enjoy yourself - you deserve it! Kxx
• in reply to
Hi Kate
thought I had replied to you! Yes, I'm back and feeling good, ready to take on the world.... so if you need anything, think i could help in some way again then shout... email me?
Tasch, regarding posts about your adventures, accomplishments and ambitions.
We have, several times a week, panicky sounding posts from the terrified newly diagnosed. They go to this site for info and support, but they also read about depressing developments in how thus disease sometimes evolves over time. They seem to freak out. Which is understandable.
So positive posts would be super, super helpful and supportive. That APLS road has a lot of possible detours and branches. Our readers need to know that not all of these paths lead to gloomy destinations.
So do tell us all about your adventures! I for one would love to read them!
Thank you for your inspiring post. I've recently been diagnosed with APS and one of the things that worried me the most was going on warfarin, as I too have horses, and couldn't bear the thought of not riding again, because of the higher risk. On balancing everything up I have continued, albeit, limiting myself to gentle hacks now.
Thanks for your feedback - I will try to write some more about the stuff I get up to - I am very active and love to be outside...
Perhaps that ought to be a poll?
If there is anything you want to chat about then please shout - Either ask a question or message me directly...
I bought my first horse after my transplant and used to compete at cross country with him (and he was an arab!!!). I now do dressage and a few SJ lessons too. I couldn't be without horses!
Hi there great to see you back in town... it seems like a hundred years ago,.. since that day at HU learning what we might be doing on here! Glad to here about your life with bells on. Mary F x
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