I have been diagnosed with Hughes Syndrome about 13 years ago, when I was pregrant with my 2nd child. I had three miscarriages before this and this is how they found the reason for my miscarriages. I have all the usual signs for Hughes syndrome, but lately I have had a lot of pains in my legs, nodules flare ups and something very different is that I have pains in my shoulders. Lifting my arms feel very heavy after a short while, even when brushing my hair or washing my hair, or even brushing my teeth! I have no upper body strength and I am constantly tired. Does anyone know if this is linked to Hughes syndrome, or could it be nothing to do with it ... any suggestions?