If you see (or have seen) an APS specialist in the US, would you mind sharing who you see and your experience?
I am in the southeast. the closest I have found is Dr Tom Ortel at Duke, which is 8 hours away. Has anyone seen him, or should I go to HSS in NY?
I'm hoping to consult with someone who will guide my internist at home, perhaps. She is knowledgeable about clotting disorders (has one herself) but doesn't want to make recommendations. I think she would be open to monitoring and consulting with a specialist.
This will be out of pocket, require travel, hotel, etc. so I want to see the right person!!