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Hughes Syndrome APS Forum

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Success stories

Lauriem4 profile image
10 Replies

Hi all I've found out im pregnant again after 2 late losses. But ill be treated for the aps during this pregnancy with heparin and aspirin. I'm just very anxious and looking for anyones success stories after being diagnosed in the next pregnancy. Thankyou

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Lauriem4 profile image
Lauriem4
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lupus-support1 profile image
lupus-support1Administrator

At St. Thomas’ Hospital, London there’s a special pregnancy department. The walls are filled with babies!

May you be blessed with a wonderful pregnancy and a beautiful, healthy baby!

With good wishes,

Ros

PS It took me a very long time to conceive. I gave birth to twins. I know and understand how difficult it is not to feel anxious!

Lauriem4 profile image
Lauriem4 in reply to lupus-support1

Thanks so much im currently under coventry hospital for high risk pregnancies. Aww thats amazing 🥰

Bella_Bee profile image
Bella_Bee

Yes, right here. I had 2 miscarriages then I was diagnosed with aps and Factor V Leiden. I injected dalteparin every day throughout my pregnancy (and 6 weeks after) and took mini aspirin. Had an elective c section and healthy baby boy 3 months ago. You'll be absolutely fine. Congratulations !

Lauriem4 profile image
Lauriem4 in reply to Bella_Bee

Thanks for your reply makes me feel more positive x

djmarian profile image
djmarian

My daughter has 2 beautiful children following the heparin and baby aspirin regimen. Please don’t give up ! Believe !

Lauriem4 profile image
Lauriem4 in reply to djmarian

That's amazing thankyou x

MaryF profile image
MaryFAdministrator

Hi, I had three children after being treated with Aspirin/Fragmin, please do use this forum as much as you like as so many ladies on here have been in your position and will totally understand how you are feeling, it sounds like you are being cared for by a good team. MaryF

Lauriem4 profile image
Lauriem4 in reply to MaryF

Thankyou Mary for your reply! Yes I will use it for support as its a hard road x

Raschen profile image
Raschen in reply to Lauriem4

Hello, I took daily heparin (clexane injection) plus aspirin throughout my twin pregnancy and three months afterwards, and I have two lovely boys who are now 12. During the pregnancy I was also advised to rest as much as possible. Although it got harder and harder throughout the pregnancy to inject using heparin it was worth it for me. I ended up injecting in the top of my thighs, as with twins I was very large and my skin was so tight around my tummy that it was impossible to inject there in the third trimester. I had miscarriages before my twin pregnancy, and believe this was due to the sticky blood not being able to pass through the placenta because then I had no heparin or aspirin treatment. X

Lauriem4 profile image
Lauriem4 in reply to Raschen

Thanks so much for your reply . Yes they think the sticky blood causes my 2 missed miscarriages. I'm on aspirin and start heparin next week after my 6 week scan 🤞 x

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