Successful pregnancy stories - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Successful pregnancy stories

Day28 profile image
14 Replies

Hi I am new to the sight having recently lost my first daughter at 32 weeks. As a result of tests they now think I have APS, just waiting on second set of bloods. Does anyone have any positive pregnancy experiences as I'm now terrified for the future but am desperate to be a mum to a child on earth. Thank you x

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Day28 profile image
Day28
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14 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi, I am very sorry for your loss. 

I had a still birth at 38 weeks, nearly 30 years ago. I had a further 2 wonderful babies, who are now in their 20's. This was back when APS was really not known about. I was not diagnosed until 10 years ago.

So to answer your question, even without diagnosis I went on to have 2 successful pregnancies. With the diagnoses, you will be well cared for and monitored, so hopefully the future will not be so terrifying.

Wishing you really well, and I am sure many more will answer your question with successful pregnancies.

Day28 profile image
Day28 in reply toHollyHeski

Thank you for responding sorry for your loss to but it's comforting to know there can be success after such terrible circumstances x

stillwaiting profile image
stillwaiting

My 3 boys are now in their twenties. I had 2 miscarriages each at 17 weeks. I have been diagnosed for 3 years. In those days little was known about aps, I received no medical help yet I still had 3 healthy children.

I am so so sorry you are going through the pain of losing your daughter. Rest assured that you will be well looked after in your next pregnancy.

Just to add ~ I was told that I did not need a second test to confirm. I think it is now thought that the second test is no longer needed.

With love

Lynn.x.

Day28 profile image
Day28 in reply tostillwaiting

Hi Lynn, thank you very much for sharing your story and sorry for your losses. I think I'm going to try and see a specialist in the field as my consultant said I needed 2 tests. X

Yllek profile image
Yllek

Hi

I'm so sorry for your loss xxx my daughter was born early and died when she was 6 weeks old. I didn't know at that time I had APS. 

I also had 3 miscarriages - again no tears for this condition. Also a placental abruption but by a miracle my daughter survived. 

I have 3 healthy children and dicnt find out until many years later that I have this condition. The fact they know you have it means you will be well monitored and looked after. 

Keep strong I know how hard it is xxx

Day28 profile image
Day28 in reply toYllek

Thank you for responding and sorry to hear of your losses, it's very hard in these early days to stay strong but I am trying xxxx

Yllek profile image
Yllek in reply toDay28

It is very hard and you can't always be strong it will take a long time to come to terms with. Sending you lots of love x

Tinkytink profile image
Tinkytink

Hi there, I am also new to the site as I was only diagnosed yesterday. And only today realised this could have been a contributory factor in the stillbirth of my little girl during labour many years ago, and also in the emergency section needed to rescue my son at 36 weeks after a sudden drop in his heart rate. 

I know that this has probably been the most traumatic and heartbreaking event of your life and unless anyone has suffered a similar loss, they cannot know how hard it is to cope with. Did you have any idea your little one was getting into difficulty and what reason did they give if any? I was never given a reason for my sons sudden deterioration, it was classed as "just one of those things". I feel sure that they will look after you extremely well and like me, you will go on to have a happy outcome. your new baby won't ever replace your precious little girl, but will definitely bring comfort and focus to your life after all you have been through. Will be really happy to hear when little one arrives safely. Best Wishes

Day28 profile image
Day28 in reply toTinkytink

Hi and thank you for responding I'm sorry that you have also had to suffer in this way. There were no signs just reduced movement and when I went in for the scan she was gone. They've said my placenta was small and not functioning properly so she wasn't getting the nutrients she needed as a result she stopped growing at 26 weeks, I then developed pre eclampsia and they said that tipped her over the edge. I've also had a positive for sticky blood so they think that may have been the root of everything. Thank you for your kind words and I hope in time I can let you know when I have a healthy baby in my arms. I wish you all the best with your recent diagnosis x

Groovy profile image
Groovy

Thank you for starting this post- I've had 4 miscarriages (all early) and was diagnosed with APS late last year. I really hope that the medication will support my next pregnancy. Wishing you all the best. It is comforting to know that I am not alone in this struggle. Much love to you all xx

emem_17 profile image
emem_17

Hi I'm sorry for your loss. I was diagnosed with aps a year before falling pregnant after having TIAs. I was started on aspirin and injections (brain fog, cannot think of the name right now) at roughly 3 weeks pregnant and monitored closely and was induced at 39 weeks, she will be one this month our little miracle baby <3 hope you have a successful pregnancy following your diagnosis. 

Yissica profile image
Yissica

Don't  worry APS is annoying but once diagnosed gives you good care generally. 

I had over 6 early miscarriages all blamed on polycystic ovaries. On doing IVF first was again lost at approx 9 weeks. They tested for APS just in case and found it was positive. Immediately put onto aspirin and heparin as soon as both eggs implanted. I lost one at 11 weeks but miraculously my little girl went to full term and is now 9 years old. She even decided to surprise her dad and arrive dead on due date! I stopped heparin at 36 weeks and had weekly ultrasounds until delivery to check her vital signs.

Unfortunately lost 3 others after but still have a beautiful child.

Keep thinking positive and now you will be watched like a hawk by the obstetrics team.

Good luck 

Day28 profile image
Day28

Thank you for all of your responses it's helpful and comforting to know that hopefully we will get our rainbow x

greenlady profile image
greenlady

Day 28-

Much love x. Perhaps it will give you hope ( and a rainbow :-) ) to know my daughter had two stillbirths, and now has beautiful blessings - a daughter who will be 5 in May, and a son who will be one in October. These babies, and my daughter, had the best care possible after I was diagnosed with Hughes-they took all possible care of her, as they tested and she is borderline. Thinking of you, it will be well x

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