I was diagnosed with Hughes Syndrome a couple of months ago by Professor Hughes. He advised my GP to start me on Warfarin as quickly as possible to prevent stroke or another TIA. I also saw Professor Khamashta. They both told me to buy a Coaguchek machine and self test. I did this. I expected the Warfarin nurse to help and advise me but instead she wanted to know 'why do I have to self test? Is the machine quality checked and calibrated?' Each visit to her clinic I was hit with questions I couldn't answer. This was new to me I told her and asked her to get in touch with London Bridge Hospital. I felt so intimidated by her I cancelled an appointment. My husband and I met with my GP that week to ask if I could report to her instead. No way! She didn't want the responsibility! I agreed to go back to the clinic under their terms. I was expecting to hear from her and be told to make an appointment. Yesterday I received a letter from my GP saying that she will no longer prescribe me Warfarin as I'm self testing! She suggests I get my prescriptions from London Bridge Hospital! (I live in Scotland) I'm devastated at this response.
Has anyone else had similar problems?