Questions about getting my wife pregn... - Hughes Syndrome A...

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Questions about getting my wife pregnant, while having APS...

jaymacz28 profile image
8 Replies

I know this sounds like a weird question, but my wife and I had our first child two years ago with no problems. I was not on any medications at the time and I lived a fairly active lifestyle.

A year later I was diagnosed with APS along with Hashimoto's. My doctor started me on Warfarin and Synthroid which have been working well. My thyroid is under control and my INR is around 3. I feel great now compared to what it was like a year ago, but I have also gained weight and am not as active as I would like to be.

Our daughter just turned 2 and we want to get pregnant again. My doctor said everything is ok, but I am still very hesitant because of the APS and the meds that I am taking. My rhumetologist said APS can't be passed to the children and I have read that APS in women can cause pregnancy problems. Is there any information on whether or not the man having APS along with taking medication can have any adverse effects on a womans' ability to get pregnant and have a safe pregnancy? I just want to feel positive about trying for another one. Thanks in advance...

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Wittycjt profile image
Wittycjt

Great question, I have wondered about this myself. I will be curious to see responses. Good luck! Cindy in NJ

CormorantWatcher profile image
CormorantWatcher

Your condition won't affect your wife's pregnancy, if you were lucky enough to fall pregnant. But stressing (which is understandable) might affect your ability to get pregnant in thebfirst place.

From experience (though not design) I was very ill when we were pregnant with our second child, I was off the board and no help at all, which jeapourdised my wife's health, so try to be as healthy as you can to help out.

I also found slowly increasing my activity made me feel better - but I'm sorry, I don't know what Hashimoto's is as to how it affects you.

Grsmith1982 profile image
Grsmith1982

Hi, my husband has APS, he was diagnosed following a stroke when our eldest child was 10 months old.. we now have 2 healthy children and another one on the way, your APS status has no bearing on your wife, so no need to worry there.. relax and enjoy yourselves, as long as you are fit, healthy and feel ready for another one good luck to you both, x

MaryF profile image
MaryFAdministrator

Hi there, with all of us we try, where possible to be as healthy as possible including trying to reduce the stress that our disease(s) can bring to the equation. I note you are on Synthroid in the UK this is called Levothyroxine. If you are gaining weight you may have to insist on better testing. If your TSH is the only test being done, it is notoriously unreliable. When I test my thyroid I do around 15 different tests privately. Also some people do not convert the synthetic T4 to T3 and do better on Natural Desiccated Thyroid, this can be harder to get prescribed, but worth looking into. I hope you enjoy making your plans for extending your family. I will also add that is is also a good idea to keep an eye on our levels of vitamin D, B12 and Iron, along side your extensive thyroid testing which must also look at your levels of thyroid antibodies. MaryF

Ray46 profile image
Ray46

I was diagnosed with APS a bit over 2yrs ago, been on warfarin nearly two years now, and diagnosed with Hashimotos just over 6 months ago. I am on same meds as you plus multiple meds for high blood pressure.

APS likely does have a genetic component (Prof Hughes often writes about the importance of family histories), Hashimoto's definitely does (with some actual genes identified I believe). But it is almost certain in both cases that the genes are just a risk factor and other triggers are needed as well. No one can tell you what the actual chance is of passing on either disease, we just don't know. There are plenty worse genetic risks you could pass on and not know - at least we know what symptoms to tell our kids to watch out for.

I'm done having kids (I think), the ones I already have are more than enough, but if I were looking to have more the main things that would concern me (over and above things like the meds affecting performance, which would concern me regardless of more wanting kids :-) ), would actually be:

1) am I fertile, is my sperm healthy - easy to get that checked, saves worrying about whose "fault" it is if you don't get pregnant

2) am I fit and healthy enough to support (emotionally, physically, financially) my wife through pregnancy, childbirth and raising another baby when we already have a young child. A lot can happen in pregnancy and birth, not all of it good, those risks are always there the question is not really about them, it is "am _I_ well enough, stable enough, fit enough to cope if X happens". Don't forget it is not just about supporting your wife but also your daughter. You also need to balance the option of "waiting a while and making sure I am stable" against the fact of getting older. This one is really the big question, and only you can answer it, remember it isn't about whether other people think you would be mad, it is about what you think.

Ray46 profile image
Ray46 in reply toRay46

Almost forgot - in terms of passing APS on to your wife or your APS affecting her pregnancy, whilst not wanting to say "cannot happen" with this disease, I am pretty sure you would be the first documented case ever, anywhere, if it did.

jaymacz28 profile image
jaymacz28

Thanks everyone for their replies. I feel much more confident now, knowing that there are people out there who have dealt with these same problems while having APS. Its one of those things that always crossed my mind when thinking about having more kids, but I could never find any information on it. Ray46, thanks for your reply. You gave me pretty much all the answers I was looking for.

HollyHeski profile image
HollyHeskiAdministrator

Let us know when you hear the patter of little tiny feet - xx

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