Clots in liver

[Groovy]

Has anyone had clots in their liver? I was poorly last year and liver function was very abnormal and it looks like it's my APS. I'm being referred to a haematologist. The consultant said I'll probably need anticoagulants for life. Just wondered what others experiences were xx

[daisyd]

Not sure but I had Hellp syndrome which affects the liver when I was pregnant, I think can be linked with hughes syndrome that was in the early 80ies lost the baby I was expecting and I gradually improved advised not to get pregnant again

[Groovy in reply to daisyd]

I hope it's not that! I'd love a family in the near future. I've had 4 early m/c's but that was before APS was diagnosed. Thank you for replying xx

[HollyHeski Administrator]

Hi, I have always had elevated liver results, was investigated years ago with MRI and biopsy, they decided to leave and monitor - nothing has changed since, still get high blood results, they now just say 'thats your normal'.

Go through the testing hopefully just for peace of mind. Good luck xx

[Groovy in reply to HollyHeski]

My liver function has been high in the past and they've retested. The most recent one was normal but then I've not touched alcohol in almost a year and I've lost weight to help as I have a high bmi. Hopefully anticoagulants will help and I'm hopeful that my general health might improve! Xx

[HollyHeski Administrator in reply to Groovy]

Well done for improving your BMI & staying of the drink. I cant drink anyway and havnt for years, told my liver prob was related to APS, I have no probs other than blood results. You sound a very pro active positive person, hopefully this health scare will be behind you soon xx

[Manofmendip]

I had two bouts of non-viral hepatitis one in 1991 and the second in 1996, both before I was diagnosed with APS.

When I first saw Prof Hughes he said that he believed that both bouts were caused by sludgy blood congesting the liver. He went on to prove this by putting me on Warfarin (I am now on Fragmin), following which after two weeks on Warfarin my liver functions were back to normal.

Dave

[Groovy in reply to Manofmendip]

I think they tested for hepatitis. They said that there were lots of small clots so hopefully I'll be referred soon and start on anticoagulants. I hope that they can find one suitable for me as I'd like to start a family in the near future and I know that some can interfere with that! I hope that you are getting on okay with the warfarin xx

[Manofmendip in reply to Groovy]

Good luck and keep pushing them.

Dave xx

[Wittycjt]

Best of hopes to you I hope they find this to be just a "bump" in the road. Cindy in NJ

[Groovy in reply to Wittycjt]

Thank you. Yes- I've had quite a few 'bumps' in the road over the last 4 years healthwise. I am so thankful to the doctors who have helped me throughout this time. I have faith that good health is just around the corner! X

[KellyInTexas Administrator]

Yes, about 17 years ago I went into gall bladder failure. No stones- just the gland lost its ability to squeeze when food passed by. ( low ejection fraction.)?i was also going into bouts of non mechanical ileus several times a month at the same time. All this went on for a year or so until I the gall bladder was discovered to be the culprit. In the hospital my liver enzymes were high. ( off.)

No one could ever explain why any of that happened. The ileus bouts continues for years- and other organ failures.

APS was diagnosed 8 months ago. Likely the liver counts ( three of them) being abnormal due to APS. The ileus bouts were retrospectively ( post APS Diagnosis) diagnosed as hypo profusion to the bowels due to micro clots.

I suspect you will feel much better anti coagulated.

[ndstephens49 in reply to KellyInTexas]

My gall bladder also had low ejection fraction and was finally removed. Nancy

[Groovy in reply to ndstephens49]

I had mine removed in 2011 as I had lots of small stones. They think I had a street he blocked in my bike duct last year as I was gettin excruciating left upper abdominal pain which has now thankfully gone! I use to feel as though I was going to die

[Groovy]

Thank you everyone. I hope that I will feel better too. I can't believe that it's taken a year for them to diagnose the clots in my liver after various blood tests, scans and a liver biopsy. Fingers crossed my appointment will gone through before I have any other issues! I don't want any other organs forming clots!

[MaryF Administrator]

Hi there, I hope this is sorted for you, also it is not that uncommon with Hughes Syndrome/APS for Budd Chiari Syndrome to occur, it may be good to rule this out. ncbi.nlm.nih.gov/pmc/articl... MaryF