Clots, long lasting in lungs - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,354 members10,542 posts

Clots, long lasting in lungs

Skyllark profile image
9 Replies

Has anyone that has had clots in their lungs that have lasted for a few months... in the smaller veins... even with large regular and increased blood thinner injections.

Written by
Skyllark profile image
Skyllark
To view profiles and participate in discussions please or .
Read more about...
9 Replies
shazzymo profile image
shazzymo

Hi I haven't had a clot on lungs but I did have a large DVT in my right upper arm 11 years ago. I was told it would disburse once on blood thinners. However I was getting alot of pain even after 5 years. Dr ordered another ultrasound and found its still there but historic. My INR range has been altered and Warfarin dose is currently 3.5mg to 4mg and the pain has gone.

Skyllark profile image
Skyllark in reply to shazzymo

wow! that sounds uncomfortable.. my wife is the one with APS(CAPS)... she has had a clot in the lower end of her right lung... in the small veins... her injections were increased up a few units since then and it has not gone away... and I think because where it is they can not go in and remove it...

Crouchintiger profile image
Crouchintiger in reply to Skyllark

Hi, that sound pretty nasty. I have had lung clots and it will take about six weeks for the body to reabsorb them, is that what you were asking? It's late here so im not understanding the question. Hope she's on her way to recovery!

MaryF profile image
MaryFAdministrator

Hi, not had this myself, but there are many on here you have had that, I am sure you will get some replies about it. webmd.com/lung/pulmonary-em... MaryF

Raw57 profile image
Raw57

I have a chronic DVT in my right subclavian and jugular veins but good blood flow. My son has had many PEs. Some are chronic and some go away. IThink if they were arterial it might cause concern or issues but they are venous.

GillyA profile image
GillyA

My clot was in the brain, but 18 months after diagnosis they say it’s still there. Haeme said if it hasn’t gone after the first 3 months of treatment it’s unlikely to go. So I keep my fingers crossed, carry on taking the warfarin and try to ignore it and not worry too much. They say I’m stable and that’s positive.

Not always that much fun though.

David-Nisbet profile image
David-Nisbet

I had bilateral PEs & subsequent almost total blockage of pulmonary arteries. I had PTE surgery 1999 to clear arteries but I believe there are still micro clots in both lungs. I am now 74.

Angelique76 profile image
Angelique76

Hi! I have had PE and several episodes of DVT in both legs. Blood thinners are intended to prevent the clots to get bigger, but they do not “dissolve” an existing clot. You will have to wait for your own body to do its best to break them down or create new blood vessels to restore circulation in the affected area. There are also medical procedures that can help in this process, depending on the location and severity of the blockage.

rach1081985 profile image
rach1081985

I have many pes but in my legs I have vein damage ...when become unwell it swells...when scanned it original clot from 15 years ago which has not dispersed.....they will not remove either as new veins have developed around it so would not be beneficial and sometimes can b painful due to damage..I've many scars on my legs due to the DVT damage

You may also like...

blood clots lungs

boyfriend has Hughes Syndrome. He was diagnosed with it 1 year ago and has blood clots on the...

Micro Blood clotting

Do Any of you have or have seen more micro clotting , kelly in texas has given me some - just

Update re warfarin but no clots

consultants have argued as per the NICE guidelines that maybe I should not be on warfarin as I have...

Possible clot in leg

what to do. I just found out last week that my dad has a history of blood clots and im scared and...

Bio identical HRT and blood clots

does anyone know of a connection between BIOIDENTICAL hormones and increased risk of blood clots...