Sticky Blood-Hughes Syndrome Support
8,093 members8,330 posts

Finding Drs who know about APS in the US

America college of rheumatology, Atlanta Georgia: rheumatology.org phone (404)633-3777. Email: acr@rheumatology.org

The Antiphospholipid Syndrome Collaborative Registry (APSCORE): Univ. of North Carolina @ Chapel Hill:(919)966-0572. Email: apscore@med.unc.edu: a national, NIH-funded project that often handles questions from patients and helps people find local physicians with expertise in APS

Other websites:

aarda.org ( American AutoimmuneRelated Diseases Association

Www.healthcyclopedia.com/antiphospholipid_syndrome

Possible Hospitals:

UNC Healthcare, Universityof North Carolina at Chapel Hill (Chapel Hill, NC)

Hospital for Special Surgery, Weill/Cornell School of Medicine NY,NY

Johns Hopkins University Medical Center Baltimore, MD

Duke University Medical Center Durham, NC

University of Utah, Salt Lake City, UT

University of Texas Health Science Center at SanAntonio, San Antonio, Texas

Morehouse School of Medicine. Atlanta GA

This should get you on your way to some answers, good luck let us know what you find.

8 Replies
oldestnewest

Thank you, MaryF

Reply

We all need whatever help we can get, your welcome😉

1 like
Reply

Thank you thank you thank you!! I can't thank you enough!!!!

Reply

If you plan on getting treatment in NC at UNC or Duke, research the doctors first. I live here, and have found that not all physicians are created equal :) Some Rheumatologists like to do their own testing, and if you're negative, disregard any previous test results done by any other institution. Hence, I ended up with PE's and clots despite previous positive test results.

Reply

I find rheumatologists totally useless. All they've wanted to do it prescribe steroids and lower my INR.

I see a hematologist at Mt Sinai. My wonderful hemo, who actually has APLS, retired two years ago. He's the one who taught me how to live with this thing.

My hemo is Dr Caroline Cromwell. She came to Mt Sinai from Yale and she is a coagulation specialist. I find her reasonable and smart.

1 like
Reply

How long has she been at Mt Sinai do you know?

Reply

She was at Beth Israel on 15th St, for about a year, then moved to Mt Sinai east a year or so ago.

1 like
Reply

Thank you for replying.

Reply