Sticky Blood-Hughes Syndrome Support
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An invitation to participate in a research project

The Hughes Syndrome Foundation is supporting a research study being undertaken by Dr Karen Hambly from the School of Sport and Exercise Sciences at the University of Kent.

This research is concerned with participation in physical activity and exercise among people with antiphospholipid syndrome (APS).

If you decide to participate in the study, you will be asked to complete an online survey and to share experiences of participating in physical activity and exercise with APS. Your participation in this study is voluntary and anonymous.

If you wish to participate in this study please follow the link below for further information and to take the online survey.

If you have any queries, please email Dr Karen Hambly at the University of Kent at

Thank you for reading this letter and we do hope that you are able to find the time to help us with this research.

6 Replies

So excited this is happening!


Wish I could join this, as it sounds great but I live in the US.


The survey is open to people with APS from around the world so please do take the survey.


Many thanks to all of those who have already completed the survey and provided such a valuable insight into participating in physical activity and exercise with APS.

Every contribution counts so if you haven't completed the survey I would like to encourage you to do so.

Drop me a message if there are any queries.



Just finished taking survey, it was very thorough concerning exercise and day to day physical activity. Can't wait to see results and outcome.


Thank you for taking the time to complete MrBigDog. As you can imagine, there will be a lot of data to analyse and this will take a bit of time after the survey closes. Once we have the results we will send Kate an overview of the results for the HSF website and put a link on here. Thanks again for your input.


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