I had an excellent Hematologist, until he retired recently, and he used to give me advice on APS and talk to me about the symptoms etc. Unfortunately, he has now retired and been replaced. The new person will only talk to me about my INR levels, and gives the impression that she doesn't really believe that APS exists! She wants to reduce my INR target range to below 3, and I had to explain how awful I feel when it is below even 3.5 before she left it at 3.5 to 4.
The pharmacist who measures my INR suggested being referred to St Thomas's instead, but will I gain much from this? I was diagnosed with APS in 2005 following a stroke and I have virtually all the symptoms of APS that vary in severity from time to time.