Hello I hope everyone had a Merry Christmas and mostly pain free!!! I just read About Lynn starting Heperin injections & jetjetjet giving me great advice on my decision to stay with APS specialist! I must thank you all for such great advice! I need y'all again PLEASE! I know this sounds whimpy, but it's who I am! I've been going to this HEMOTOLOGIST for 13 years now. He's been treating me for another VERY RARE blood disorder cald PV/Polycythemia Vera! In 2010 only 65,000 people in USA had it! It's mostly men in their 60's, I'm a woman and had it since 1998, at age 45! I was DX'd in 2004, but DX'D myself in 1998! I never went to doc with it cuz I was sick and tired of being told to go c a psychiatrist or it was all in my head! I've ALWAYS had hi white Blood cells/WBC & always needed an explanation from my primary in order to have surgery! My GP at that Time did me a favor & refused to give me anymore notes to get surgery! The Surgeon who was doing the surgery asked his personal physician a favor for him and take me on ASAP as a new patient! I had the surgery and wen my RBC's My Hemoglobin, My Hematocrit, Lymphocytes, My iron all started goin way up, my primary made me c my Hemotologist & I walked in and said I have Polycythemia Vera! He believed me & was tested including bone marrow biopsy & several more tes! I came up positive! It is a precancerous condition that in one day can go into the exact opposite of of all my blood tests and revert into LEUKEMIA! I'm sorry for this long explanation, but scared because who will treat my PV wen I tell him I don't want him for my APS, but still want him treating my PV??? Dr.,Cromwell told me b4 I went to her she knows nothing about PV! How do I tell this Man, whom I love, after him treating me so amazingly with PV that I don't want him! He's already spoken to me very firmly and has never b4, cuz I've been informing him af the mistakes he mad! I did it diplomatically and he took I well then, but don't think he's too happy with me now! When my son passed away, I had emergency tummy surgery with diverticulitis! There was no need for him to come to c me in hospital, but came to c me because he wanted to talk to me about my sons' PASSING! There is an emotional attachment to this man! He's a religious Irish Catholic & has been nothing but kind and concerned for me! Nanny 23/ My sister Lynn has been on this site so she can understand my illness said she'd go with me, but she's angry and may tell him off Lol... PLEASE SOMEONE GIVE ME ADVICE ON HOW TO TELL HIM I DONT BELIEVE HIM AND AM LETTING OTER DOC TAKE OVE MY APS, but you can still treat for my PV! Thx to mi sis and you all, especially Lynn who had to go on Heperin and jetjetjet, and all on this site, I've already decided to stay with Dr. CAROLINE CROMWELL! Just need t know how to do it and who will treat me for my PV! So sorry this is so long, but needed y'all to know why I'm scared! Actually it's a NO BRAINER, just like my sister Lynn said! A HAPPY & Healthy NEW YEARS, BUT PRAYING FOR ALL OF US TO BE HEALTHY!!! WE CANNOT BE HAPPY IF WE'RE NOT HEALTHY!!! GODSPEED!!!
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