I just joined the community and have read many of the posts on successful pregnancies and APS. Currently I am between 11-12 weeks and decided I just needed a support community with other people who have gone through this, or are currently going through this because I am feeling very alone and isolated.
My background: had two early miscarriages in 2014 and knew something was wrong. Instinctively I have known that I had a blood clotting issue for many years. Doctors didn’t really want to test until I had 3 but I insisted and was diagnosed with APS. I started taking choloroquine and 80mcg aspirin daily.
Found out I was pregnant in July at around 4 weeks and started the clexane injections. I also am on progesterone. My last scan was just over 2 weeks ago at 9 weeks- everything looked fine, strong heart beat and so on which was comforting as I never got to see a heart beat in either of the other pregnancies because I didn’t have a scan until it was too late.
I live in Malawi, in Africa, and there isn’t good health care here and I never would have been comfortable giving birth here, so I got set up with an OBGYN in Cape Town, South Africa before I conceived, because they have amazing health care. Before I got pregnant my doctor told me she would want me to move to Cape Town at 24 weeks so my OBGYN and rheumatologist can monitor the pregnancy better. I am going down to CT in 3 days for my first trimester screening etc. so will chat with the doctors and see if the plan is the same.
I am not sure how I am going to last 6-7 more months like this. I am so worried something will go wrong and am very anxious for this next scan. I am waking up in the middle of the night thinking about it. I am especially worried the further along I get. Early miscarriages were hard enough but I don’t think I could handle a stillbirth.
I noticed that someone people quit their jobs and were told just to rest? I basically will be doing that since I have to move away from my husband at 24 weeks so won’t be working but I like to be active- I am doing daily walking, Pilates 2-3x per week, and weights 1-2x per week; all modified and not pushing myself but I have found it really helps me.
What did you others do to ease the anxiety? Time seems to be passing very slowly.
Any thoughts or advice would be appreciated!
Thanks and warm wishes to you all!