Long story short: I had 14 miscarriages between 2000 and 2006. The 1st 11 were a combo of home tries and IUI's. Then, I did IVF twice, and an FET. Every single one lost to this horrid disorder. My APS was full blown back then. I was on the best treatment plan that existed at one of the best fertility centers in the country. The farthest I carried was 12 weeks with twin girls before I clotted at my placenta. I told my family of our long sought success, thinking we had won, only to bury them two weeks later. They were genetically perfect. It was, again, my fault they died. Eleven years later I still mourn them.
Fast forward to 2017, I'm back in the RE's office, 33 years old and emotionally ready to try again. They tested EVERYTHING. I even paid over $1250 to have my DNA and genetics examined. Green light from the RE.
My hematologist ran my panels, then ran them again 6 weeks later. Negative for APS. (WHAT?!?) Then he explained that APS is a transient disorder. It comes and goes when it wants and cares nothing for our plans and dreams. He gave me the green light for conception with the caveat that I return to his office for another panel as soon as I get my positive pregnancy test.
Then I met with an OBGYN MFM specialist who cares for high-risk patients. He also gave me the green light and said as long as I stay on low molecular weight heparin the whole time and only have ONE baby at a time, I should be fine. That complications normally arise AFTER the baby comes and you are no longer naturally immunosuppressed from the pregnancy. He says the plan is to have a vaginal delivery at 36-38 weeks to be safe and for ease of delivery. Then I get to stay for observation. There's a chance the kid gets discharged before me.
So, everything is scary and I just want someone to please tell me that they made it through the worst and came out healthy on the other side. Is anyone's circumstances similar to mine? Did anyone's APS rear it's UGLY HEAD during pregnancy or did the sleeping dragon stay slumbering?
I've read all the stories on here. Most are from 5+ years ago. I would really appreciate your stories and triumphs. I would appreciate a virtual hand hold and hug. I'm heading into the woods. I've got my map. I've got my plan. I hope we don't get lost...