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Hughes Syndrome APS Forum

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A brand new paper courtesy of one of our members

MaryF profile image
MaryFAdministrator
11 Replies

Thank you for sending me this Tracy. It makes for an excellent and educational read.

bmj.com/content/350/bmj.h1426

MaryF

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MaryF
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11 Replies
TJSTICKYBLOOD profile image
TJSTICKYBLOOD

It was a hard slog to get it published and took over 2 years, I was determined to do my bit and have great support. I hope the article helps people, it will reach a wide audience and hopefully educate a bit.

MaryF profile image
MaryFAdministrator in reply toTJSTICKYBLOOD

I am sure it will be read really widely, I have already sent it off to a few medical people who will find it very interesting MaryF

spider7 profile image
spider7 in reply toTJSTICKYBLOOD

Hi this was a very interesting paper thank you it has answered some of my own health questions

Manofmendip profile image
Manofmendip

I'm sure it will be widely read too.

Dave

SueLovett profile image
SueLovett

Thank you for this. We have a trainee G.P. at our surgery, who has shown a bit of interest, I am going to send her a note with a copy.

Alarmingly many of us are lucky to survive. Unfortunately my own mother didn't and diagnosis of severe 'autoimmune disease' etc was only established after her death.

I hope you will keep as well as possible xxx

GinaD profile image
GinaD

Well done!

MaryF profile image
MaryFAdministrator

Hear hear! MaryF

InSpain profile image
InSpain

I second that Mary xxx

Good4u profile image
Good4u

Wow, it's a great article. ! :-)

Carmen in australia

TJSTICKYBLOOD profile image
TJSTICKYBLOOD

APsnotFab that sounds like sun service you are getting from yourGP's it's not good enough. It feels like we have to constantly push push push. Because of the word limit my paper didn't have all the times I was admitted to hospital and fobbed off. Yes a lot of doctors and people forget that APS can pretty much target our bodies anywhere it's an intricate illness.

CJWyatt profile image
CJWyatt

Thank you Tracy from across the pond. Very informative and well written. I am amazed how under diagnosed APS is here in the states and feel I have a personal obligation to share my experience. I got "shot down" on an information board by some lupus people but I don't take it personal - one person may be helped. Thanks again and bless you on this journey.

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