Posts - Hidradenitis Suppurativa Support | HealthUnlocked

Hidradenitis Suppurativa Support

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Volunteers needed

Hi. This page is a place for us to come for support or advice when we need it most but it's sadly not maintained as often as is required.I need some help...

Hi. This page is a place for us to come for support or advice when we need it mo...

lostkitty

Administrator•5 months ago

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Finally diagnosed!

It’s only taken 7 years 🙄

Ms_J

•1 year ago

2 Replies

Looking for consultant recommendations

So it looks like all my daughters have inherited HS from me. :( My youngest is only 16 and I'd like to get her to see the best UK consultant I can in the hope...

So it looks like all my daughters have inherited HS from me. :( My youngest is ...

Lettie_WP

•2 years ago

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Flares, sickness and bursting

I’m getting mini flares at the moment which are lasting up to a day or a few hours… but when I know a burst is imminent, I always feel sick and tired. This...

I’m getting mini flares at the moment which are lasting up to a day or a few hou...

Nicolaclare01

•2 years ago

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I've waited 68 years to get a disease I never heard of!

Hi I'm new to this site but I've been a member of HealthUnlocked --COPD and Asthma for a few years. Over the years and rather mild and sporadically, I have had...

Hi I'm new to this site but I've been a member of HealthUnlocked --COPD and Asth...

patmc1

•5 years ago

7 Replies

Hs I hate you but you won't win

Hello Just found this community in regards to HS and wanted to give you my insights. I have suffered for HS for 15 plus years. Long time I know. I have...

Hello Just found this community in regards to HS and wanted to give you my insig...

Mtechx

•5 years ago

2 Replies

HS and Humira questions

I've been taking Humira for 6 months to control my HS. I haven't really seen any side effects. Lately, though, my knuckles and my hands are sore. They feel...

I've been taking Humira for 6 months to control my HS. I haven't really seen any...

imaspud67

•5 years ago

2 Replies

1 whole year without a flare up and then boom. One happens.

I don’t know what to do anymore, I’m having a flare after a year of not having one. I’ve given up smoking, lost weight, so I’m now putting it down to hormones....

I don’t know what to do anymore, I’m having a flare after a year of not having o...

Nicolaclare01

•5 years ago

2 Replies

Going to discuss with Derm to try Humira

I am 39 years old and was officially diagnosed with HS 5 years ago, however, I’ve been dealing with this disease since puberty. Recently, I’ve developed...

I am 39 years old and was officially diagnosed with HS 5 years ago, however, I’v...

inquiring_mind

•5 years ago

1 Reply

Update

Hi all I thought I would update you on my progress since I last posted about 7 months ago. At that time I had lost access to my trusted Skinsan because my gp...

Hi all I thought I would update you on my progress since I last posted about 7 m...

choirgirl57

•5 years ago

5 Replies

Dealing with Hs and loosing weight

So recently I was diagnosed with Hs but unfortunately it’s been going on for a good few months now just under a year. I have been finding my self very...

So recently I was diagnosed with Hs but unfortunately it’s been going on for a g...

Lukaszmiszkiel

•5 years ago

4 Replies

Finding Others

Is anyone out there experiencing a weight gain while taking Humira? I am certainly not a gym rat, but I decided within the last year to finally doing smething...

Is anyone out there experiencing a weight gain while taking Humira? I am certai...

mommy483

•6 years ago

1 Reply

HS and Me

It has been less than a year since I was diagnosed. Before that I was told a lot of different things. That it was my skin, that it was acne and the most...

It has been less than a year since I was diagnosed. Before that I was told a lo...

mommy483

•6 years ago

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A little about me

Hi I'm 33 years old I've dealt with HS since I was 7 years old my affected areas are my armpits under my breast my groin area and my inner thighs I am...

Hi I'm 33 years old I've dealt with HS since I was 7 years old my affected areas...

Rshahrok

•6 years ago

2 Replies

HS sufferer

Hi, I was officially diagnosed with HS in my groin area of August last year, whilst pregnant with my son. Since giving birth I have now been put on a...

Hi, I was officially diagnosed with HS in my groin area of August last year, wh...

Leaandfrank19

•6 years ago

6 Replies

12 years now.

I’ve been suffering with HS for a long time. Only started getting worse though, past 5 years. My body feels ruined. I diagnosed myself pretty much, because my...

I’ve been suffering with HS for a long time. Only started getting worse though, ...

OutgoingIntrovert

•6 years ago

7 Replies

New member seeking advice please

Help please, I have been using prescription body wash called Skinsan which contains Triclosan but my GP says it’s no longer available and has advised buying...

Help please, I have been using prescription body wash called Skinsan which conta...

choirgirl57

•6 years ago

4 Replies

Thank you

Hello I am a Rory I have had HS for 8 years. I have been using this page for about 1 year never posted though I would just like to say thank you to all the...

Hello I am a Rory I have had HS for 8 years. I have been using this page for abo...

Ukrory95

•6 years ago

1 Reply

HS- lumps in my groin

I have been suffering with lumps in my groin area for a few years now, doctors first thought just boils or in growing hairs, I had my first lump removed at the...

I have been suffering with lumps in my groin area for a few years now, doctors f...

hels41

•6 years ago

1 Reply

Monthly hidradenitis infection fever

I’ve be suffering for many years with it in my armpits( painful, not like to look at) . Then about a year ago it started in the groin area . I’ve tried many...

I’ve be suffering for many years with it in my armpits( painful, not like to loo...

hayleyt14

•6 years ago

6 Replies

Advice please!

I’m currently on Rifampin and Clindamycin, but I have given up drinking until I’ve finished these antibiotics, but I’ve had all the tests and everything for...

I’m currently on Rifampin and Clindamycin, but I have given up drinking until I’...

Nicolaclare01

•6 years ago

2 Replies

Hs and Botox

Hey I have heard that Botox can help with hs as an alternative to surgery for about 18- 24 months. Does anyone know anything about this??

Hey I have heard that Botox can help with hs as an alternative to surgery for ab...

bessy_10

•6 years ago

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Hi everyone

Hi I’ve had HS for about 5 years now I’ve got it under my arms and I know shaving is not an option and I don’t want to try self waxing as I already did that...

Hi I’ve had HS for about 5 years now I’ve got it under my arms and I know shavin...

bessy_10

•6 years ago

8 Replies

HS

I was diagnosed 10 years ago with hs. It started around the age of 25 I am aged 46. My problem is not life threatening but when they flare up the little sores...

I was diagnosed 10 years ago with hs. It started around the age of 25 I am aged ...

Witchybrew

•6 years ago

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Emuaid first aid ointment

Okay so like when I first was typing in treatments for HS Emuaid popped up and it sounds like an effective product from reading stuff on the website but wanted...

Okay so like when I first was typing in treatments for HS Emuaid popped up and i...

Sophhhh

•6 years ago

1 Reply

So far no more painful outbreaks!!

Hi, my name is Susan and I was finally diagnosed with HS last year after going to see my dermatologist for a mole check! I had been having super bad out breaks...

Hi, my name is Susan and I was finally diagnosed with HS last year after going t...

Suzoo

•6 years ago

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Hidradentitis suppurative specialist?

Dear community, I am looking for an HS specialist. My son may have it .....his fingers are badly affected. The GP has no interest in helping. Can anyone...

Dear community, I am looking for an HS specialist. My son may have it .....his f...

AliceWolf

•6 years ago

3 Replies

Long term medication?

Hi, I recently got a pretty dismissive diagnosis in December of Hidradenitis Suppurativa. I have suffered with reoccurring cysts for two years and through...

Hi, I recently got a pretty dismissive diagnosis in December of Hidradenitis Sup...

emma_elizabeth_1992

•6 years ago

19 Replies

Information please

Irenejudge

•7 years ago

4 Replies

The Lack of knowledge is scary.

I’m rather concerned by the lack of knowledge being passed onto patients of HS, the cause of HS is known so why are people still left asking the Internet or...

I’m rather concerned by the lack of knowledge being passed onto patients of HS, ...

LadyJoro

•7 years ago

7 Replies

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Posts - Hidradenitis Suppurativa Support | HealthUnlocked

Hidradenitis Suppurativa Support

Volunteers needed

Finally diagnosed!

Looking for consultant recommendations

Flares, sickness and bursting

I've waited 68 years to get a disease I never heard of!

Hs I hate you but you won't win

HS and Humira questions

1 whole year without a flare up and then boom. One happens.

Going to discuss with Derm to try Humira

Update

Dealing with Hs and loosing weight

Finding Others

HS and Me

A little about me

HS sufferer

12 years now.

New member seeking advice please

Thank you

HS- lumps in my groin

Monthly hidradenitis infection fever

Advice please!

Hs and Botox

Hi everyone

HS

Emuaid first aid ointment

So far no more painful outbreaks!!

Hidradentitis suppurative specialist?

Long term medication?

Information please

The Lack of knowledge is scary.

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Topics

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