I am new on here and would be interested in anyone hacking the same problems as me.
I was diagnosed with Crohns Disease in 2000 and weighted 10.7 stone.i am 5ft 2. I have since developed Enteropathic Arthritis and have trouble walking some days let alone exercise.
I can’t tolerate eating fruit, veg, beans, pulses, grain, fibre (only in very small amounts), anything with skins. I have found it so hard to lose weight. I am now 22.6 stone and feel disgusting.
Does anyone have any tips please?
Written by
Alisonf1969
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Low carb works for most people. Nothing with added sugar, eg cakes, biscuits, desserts, confectionery (things like ice cream and chocolate contain emulsifiers which are like detergent and will make Crohn' worse) or fruit juice. No bread and no white rice. Limit Brown rice and potatoes.
Carbs raise blood sugar (glucose) what your body can't burn up gets stored as glycogen in your muscles and liver. When those stores are full the liver turns it into fat through 'de novo lipogenesis'. High blood sugar results in high insulin which results in chronic inflammation and arthritis.
I can tolerate white rice but not brown or whole grain.
Thank you for your reply
Hello Alisonf1969 firstly welcome to the community and please don't beat yourself up as that won't achieve anything. Heres a link about maintaining a steady weight with crowns disease please see:
A lot of people with Crohn's benefit from a gluten free diet and I'm a coeliac and a foodie so we have lots of gluten free recipes on here.
It took so long for me to be diagnosed as a coeliac my immune system attacked my colon and I have microscopic colitis which I keep in control with my diet and I avoid all alcohol and astringents.
And here's a link about exercise for those with arthritis:
Thank you so much for your reply. I will check out the links as they will be useful
Crohns Disease is rotten. A relative of mine had it, and it was not nice.
I would strongly urge you to discuss this question with your dietitian, preferably one who specialises in your condition. Ask your GP or consultant.
None of us here is a professional. Even if we were qualified and working in that area providing advice on this forum would be outside our boundaries. That means that none of the dietary advice given here can be taken seriously.
Is there a specialist group for people with Crohns where people can share experiences and perhaps share professional advice they've been given?
Thank you for your reply. I am in numerous groups on Facebook for people with Crohns but it varies so much, person to person, nobody really like to say anything about dieting.
I see a dietician but unfortunately they are just a general dietician who keeps mentioning eating fruit and veg despite me telling them I can’t tolerate it xx
That's very unsatisfactory. I wonder if you contacted the Crohns Disease society (I presume there is one) would they have information about specialist dietitians.
In the meantime, perhaps if you listed the foods you know you can tolerate, you and your current dietitian might work something out.
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