Just yesterday (a full 4 months) after the initial consultation at the dermatology clinic, I got a kind o' confirmation of the long-suspected diagnosis of Dermatitis Herpetiformis. The specialist did not at any point give a name to the condition I have, but mumbled that the skin biopsies and the symptoms I had presented which had ameliorated with cutting out gluten from my diet indicated 'a condition which could be treated with Dapsone'. Now, I know it's used for leprosy but unless the symptoms are identical I do not have leprosy! I found it very weird that I was sat in silence in the specialist's office for precisely 5 minutes, having waited half an hour past my appointment time, only to be told I had to go for yet another blood test (without being told what for) and then to get my prescription of Dapsone filled. Oh and by the way, 'some people take a bad reaction to the tablets'. That was it. No talk of dietician or any indication that I might need to check any kind of vitamin levels etc etc. I found it all very weird and disconcerting. The specialist was obviously running late and almost pushed me out the door, albeit with a smile on his face, and into the arms of the nurse - who eventually told me I was getting a blood test for glucose levels. I truly hope that nobody else gets this kind of treatment. If I didn't know how to research the web for reliable information and find helpful groups like this I would be none the wiser, and I certainly would not have known to either become gluten-free or stay gluten-free. Very very unsatisfactory. Off to collect my prescription of Dapsone, which needless to say the hospital chemist didn't have in so they had to send out for it... Ah well.
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