Was wondering if there's any others out there with the same issues as me.
It started with painful feet and hands so bad I could hardly stand for any length of time. Then the fatigue hit and upset stomachs, after 7 months and many consultants I had coeliac confirmed. After starting the gluten free diet I did feel much better but the hand and foot pain was still there after a year and really affecting my daily life. Finally refered to a neurologist by my rheumatologist and had emg tests to confirm small fibre neuropathy-next challenge to find out the cause of it. Another 9 months have passed and my blood tests in rhuem eyes show lupus but neuro thinks its sjogrens hence been given the mixed connective tissue disease title. I have been having increased joint pain in knees, elbows, face pain, fatigue, sensitive to light and very anxious. On lyrica for the neuropathy and hydroxychloroquine for the lupus symptoms. I have custom orthotics now which I would be lost without, still can't stand for more than a few hours though. Eating gluten free doesn't phase me at all, its the darn nightshade vegetables I must cut out and dairy which increases my overall inflammation. Would be great to hear others situations if similar!