I have having severe tummy pains from endometriosis and dens adhesion in my pelvic area for last 10 years. I get my stomach bloated time to time so I decided to go on gluten (and dairy) free diet which was recommended for endometriosis. I had strict gluten free and a less strict dairy free diet for 2 months and my bloating was really improved.
When I mentioned about it to my GP he decided to test my gluten intolerance / celiac. He told me to make a blood test appointment at the reception. So I made it for a week later which was the earliest they could do. He didn't tell me to put gluten back so when I was told by my celiac friend, I had to ring the surgery and ask if I need to that but the receptionist seemed to think I shouldn't change my diet as my GP knows I had been on gluten free diet but she checked with the doctor and a few hours later she rang me back and said he said yes I was correct but I don't have to eat too much and just eat normally and come to the blood test next week.
My other celiac friend advised me to go on to the Celiac UK website and told me I needed to eat gluten at least 6 weeks before the blood test. I had to go back to my GP and then he said to me if we could "compromise" to "3 weeks" gluten then blood test. Well he knew I am already suffering with symptom of bloating and nausea, rib pains, mouth ulcers and migraines aggravated (I didn't know these are the symptoms as well before) so he was probably trying to help me to speed things up.
Is 3 weeks gluten long enough after 2 months of gluten free diet?
He said if my result are positive it will be positive. But if it is negative? Am I going to have another blood test? (He said he doesn't mind repeating test but it is my blood!) Or is he just going to send me to biopsy straight away? Can he do that?
I do have some celiac symptoms but I didn't think I would be. I have severe tummy ache but I think they are because of endometriosis and it is very severe with my cycle. I could feel a lot of difference gluten free and gluten time. My mind felt so clear and such a energetic ever for a few weeks during gluten free 2 months.
Would I be sent to endoscopy even though my blood test comes out negative if I have symptom?
Whether the blood test comes positive or negative I am going to go back to gluten free after that (well if it is positive I have wait a bit longer though). I just decide to take this blood test for the sake of my family. I heard celiac could be passed on. If I AM celiac I need to keep eye on my family.
I am sorry to that I go on but I am a bit confused as I didn't go to see my GP to discuss gluten topic on that day and came out with this. I am not very happy with the fact I have to re-start eating gluten and suffer again. I got over the shocky sicky days over after re-introducing gluten but now feeling low nausea all the time and rib pains after eating gluten, frequent migraines. I wasn't that sensitive before, I am sure.
If you can let me know any of the answer I am very grateful. Thank you.