Struggling through life from phone calls to the dreaded medical😩
Jj-juju3 days ago
I have rewritten a reply I made to a fellow user as I’m sure this effects most of us here,
Anyway in the last ten days I’ve missed two drs ap...
Be the first to reply
Neuropathy --- my story!!
Ameka3 days ago
I've been reading a lot of posts on the topic of Neuropathy and I find the one common thread seems to be... WE ARE NOT ALONE!!! We are all s...
6 Replies2 Likes
Diagnosed with Idiopathic Neuropathy
Ameka4 days ago
Hi, I'm new here so still getting used to the idea of talking about myself.
I'll be back in a few days to tell my story. I want to read mo...
Severe foot pain
cindylou2226 days ago
I was diagnosed with Non Diabetic Peripheral Neuropathy many years ago; given Gabapentin which doesn't do anything. I was told the reason fo...
6 Replies1 Like
Survey for the invalidation of invisible illnesses. Research to bring awareness.
marisa_c2812 days ago
Hello, I am a college student living with a chronic illness. I am going to be presenting research on the invalidation of invisible illnesses...
2 Replies1 Like
Does anyone else get 'bouts' of neuropathy and other symptoms?
Peeks17 days ago
Hi, I'm desperately looking for some advice or guidance relating to my peripheral neuropathy.
Due to a new system at our local doctor's surg...
Brain fog! It seems that the fog just gets thicker to the point you’re re-reading the same page of a book over and over and over....
Jj-juju18 days ago
Hi all I’ve just written my bio which is more like my life story but it’s the first time I’ve told it willingly! This site sums me up to a ...
Black flecks and blood in stool
alice280019 days ago
Yesterday morning and afternoon I had black flecks in my stool and some small bits of red as well. This morning there is less black...
Hugs 🤗 Love 💕 Kisses 😘
honeybug20 days ago
Hi fellow members. 👋. 🌺🌸. I have been so overwhelmed by the vast amount of suffering that everyone has. I find myself in the boat. 💕💕?...
Be the first to reply1 Like
Isamara month ago
Hi there. My name is Jacob and I'm writing this in behalf of my Fiancé Isamar. She has been to countless doctors and specialists and none of...
8 Replies2 Likes
Non Diabetic PN
DPegga month ago
I was diagnosed with peripheral neuropathy and I'm not a diabetic. I'm on Gabapentin, Oxtellar xr, Alpha Lipoic Acid 600mg and one pain med ...
Non Diabetic Neuropathy and the DPN Cocktail
newma7a month ago
I am a non diabetic that suffers from neuropathy. I have tried a number of prescribed medications, ranging from gabapentin to Lyrica, all of...
Young, Sick, and Tired
cfs_warrior4a month ago
Hi. I’m Brooke. Been on here a bit but have not done an intro. I’m 21. Diagnosed with Chronic Fatigue Syndrome at 19. I have various other h...
9 Replies1 Like
parasann2 months ago
Hi all I too have PN and i am starting to trust less in doctors and take matters into my own hands...MEDITATE MEDITATE..it really helps...an...
MUSCLE WEAKNESS CAUSED BY PRN
Just want to ask others with Peripheral Neuropathy...has anyone developed muscle weakness with it...eg..extremely hard to climb stairs....an...
9 Replies2 Likes
Just A Thought for Some with PN: Tibial Nerve Dysfunction ?
rory19572 months ago
I'll let those of you to whom this may apply internet search engine it for yourself and just consider if it might be applicable to your situ...
How to shake off nasty comments from person at support group?
NotBertieWooster2 months ago
I was able to go to a support group meeting this Monday for the first time. The coordinator is lovely and probably half the grou...
17 Replies2 Likes
Non diabetic neuropathy and osteoarthritis in feet, my feet are disintegrating?
Teri09052 months ago
I'm brand new here, should look around more but searching for answers- went to podiatrist yesterday cause I have big lump in my arch, cant f...
17 Replies1 Like
Undiagnosed and frustrated!
LeanneMarie872 months ago
I’m wondering if anyone can help, Im new here but I’ve been struggling with intermittent symptoms beginning with the flu followed by ...
Possible Atypical TN?
phillips1232 months ago
hi guys, I have been suffering from a constant, and I mean CONSTANT, dull aching/irritating feeling just under my eyebrow on my left side, t...
12 Replies2 Likes
Slgsweeper2 months ago
Hello I am new to this group.I am a CSF leaker for about 10yrs now.I am also experiencing pressure I my neck and spine and have electric sen...
Online Survey for individuals with Painful Diabetic Neuropathy
Kitty_Kioskli3 months ago
My name is Kitty Kioskli, and I am a PhD candidate at King's College London under the supervision of Professor McCracken and Dr Win...
Burning feet in an elderly person who doesn't have diabetes
LizardLucy3 months ago
My 93-year-old mother recently began experiencing burning, tingling feet at night. She reports that her feet feel like "hot bricks" a...
7 Replies1 Like
Amandacarey793 months ago
Need some advice
think I have fibro as well as endo would like some advice on how to talk to doctor
what should i do next
MigraineGirl3 months ago
so i haven't posted in a long time, if you've read my last post then you know what was happening in my life over the last few months.
Chronic Pain Treatment Survey
CharlotteJessica4 months ago
Please feel free to take part in my anonymous study. I am looking at experiences of Chronic Pain treat...
Possible early Peripheral neuropathy symptoms or just anxiety?
Littleboy964 months agoPOPULAR
Hello, I'm new to this in the hopes that someone can help or shed light/insights. I'm a 28 year old female and for the past month I have bee...
23 Replies3 Likes
Trigeminal Neuralgia, any advise?
Coppertel4 months ago
After suffering severe pain on right lower side of my face for about a month, I've been diagnosed with Trigeminal Neuralgia. I suffered an e...
pieinthesky274 months ago
Having pain for more than 2 weeks. Dentist says nothing wrong. Doctor wants me to take Carbamazepine for Trigeminal Neuralgia. Being a non p...
Bloody Birds In My Head !
vespatone4 months ago
I'm a 51yrs old guy who has been living with a auto immune complaint and a neuropathic pain disorder. I've been on various medications now ...
3 Replies1 Like
Start a Community