Jollycat6719 hours ago
Hi everybody! I am 67 and struggling with indeterminate face pain. Doctor is treating it with Carbamazepine as if trigeminal neuralgia. Only...
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I have TN on gabapentine until surgery
Kat12245 days ago
I had surgery for my TN about 8yrs ago - its back but my surgeon and I used balloon compression! 30 min op, no scar and I'm good for about 8...
1 Reply1 Like
alice28006 days ago
I looked for a community on Addison’s disease or adrenal problems but unfortunately there isn’t one so I thought this community would be the...
Ann Paras PN
annparas7 days ago
I have PN and have difficulty with stairs and getting up from the floor so my balance is not good has anyone else have these problems?
New and saying hi
Duvetlady8 days ago
Good morning 03.15 I just found this and am glad to find others diagnosed CFS/ME) like me. I’m bed house bound and wobbly use a stick and no...
Trying to cope with TN
TLCP-girl18 days ago
I've had TN for 6 years now. Over this time I've taken Gabapentin, Amytriplin & Carbamenzapine. All have roughly the same side effects which...
Diagnosis of trigeminal neuralgia
Ericamo1a month agoPOPULAR
Neurologist told me today he thought what I have is tn. He prescribed me gabapentin. Has anyone tried this medication? Any side effects? Al...
ptexysa month ago
Im 46 and Going for 3 years Been Diagnosed with peripheral neuropathy caused by diabstes
( although they are controlled)
alvinefishera month ago
I watched the video about trigeminal neuralgia. I'm glad I don't hurt that bad, and it's probably worse to have pain in the face than in th...
Can someone please help
Sphynixratandcat2 months ago
I'm going to try and make this quick or you could be reading all day.
Doctors have scanned, xray, blood test for diebites, thyroid, b12, arth...
trigeminal neuralgia find us the cure
TONYMATTOCKS2 months ago
i am sharing this video to the world i created to make TN silent no more, i would love it if you could share it too let our cries of pain be...
Chronic fatigue 4 years
DanniJones2 months ago
It's hard to stay energised! Does anyone know if acupuncture works for it? I'm done with feeling this way and like you (most likely) have tr...
8 Replies1 Like
I have non diabetic neuropathy I have been in pain for years my legs cramp up so bad I can't move I'm wondering if it's due to shoes
BellabluePainSucks72 months ago
I have non diabetic neuropathy it's inherited I have been in pain for years so much pain you feel like you're not going to make it but you d...
7 Replies1 Like
Jennifer (Non diabetic lumbosacral radiculoplexus neuropathy with foot drop and dysthesia)
jjohnson563142 months ago
Hi, my name is Jennifer Johnson, my specialty is non diabetic lumbosacral radiculoplexus neuropathy with foot drop and dysthesia. I have a s...
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JFT787L2 months ago
Hi, I'm JT. I have CFS-ME, PTSD, Depression, Anxiety etc. Diagnosed in 2013/4 just before retiring from the RAF. As time goes by I feel l...
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Pickles692 months ago
I note some readers asking about headaches after ablation. My problem is this, I have not yet undergone any type of procedure, I'm the new k...
Would love to do this again!
move2live2 months ago
I'm new here, have perferial neoourophy, now I have a knee that needs surgery, have had usual pain like everyone else awakened by anything a...
Waiting for a fibroscan
Muriel12 months ago
My GP referred me 6 months ago for a fibroscan with hepatology. The clinic say I am not in the next 8 week blocking so it will be at least 8...
Could my illnesses have caused my child’s cerebral palsy?
Jj-juju2 months ago
Hi my 2y old daughter has been diagnosed with cerebral palsy can anyone tell me if it has anything to do with my autoimmunitys or Graves’ di...
Xindirock112 months ago
I live in Japan. And I'm sorry to say the intravenous vitamins are wearing off a little each day. So, I hope I can make it until next week. ...
Finally sleeping without too much pain!
Hi everyone❣️I'm Xindi and I'm self diagnosed PN. I've been suffering with it on and off with it moving around my body, for 3 years...but th...
6 Replies2 Likes
I’m new here. Have neuropathy. Decreasing my intake of gabapentine. Anyone taking this medication?
ellenhamid3 months ago
I had spinal cord surgery 4 months ago and ever since i have neuropathy. Worst on my hands, feet, stomach (like the feeling of a very p...
Marijuana (Medical Grade) & Neouropathic Pain
gmonokian3 months ago
I was diagnosed with Neouropathy over 85% of of my body. The numbness was bad enough but the neuropathic pain was unbelievable. The pain had...
Neuropathic Pain & Medical Grade Marijuana
Non Diebetic PN
ashishupp3 months ago
Hi First of all I want to thankful that you guys created this platform where at least we can discuss this illness.
My name is Ashish uppal a...
12 Replies1 Like
Idiopathic Neuropathy getting worse
Twitchen3 months ago
Is it just me or does the hot weather make it worse?
The cramping in my feet and legs is really bad at night.
Also, I find walking around wi...
Is anyone there?
Jangles50503 months ago
Got this nightmare pain in my ear and jaw and just been going on now for a good few years.
Trying to connectwith other people who are long te...
Tingly fingers and toes
Simonedenay3 months ago
Hello everyone I’m 30yr old female new here a little nervous about these symptoms I’ve had over the pay few days. My fingertips and som...
Fibromyalgia, menopause or just age?!
Hidden3 months ago
Fibromyalgia, menopause, or just aging?!
Hello, I’m new to this forum. I was diagnosed with fibromyalgia a few years ago and for the most par...
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