Waiting for a fibroscan
Muriel1a day ago
My GP referred me 6 months ago for a fibroscan with hepatology. The clinic say I am not in the next 8 week blocking so it will be at least 8...
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Could my illnesses have caused my child’s cerebral palsy?
Jj-juju3 days ago
Hi my 2y old daughter has been diagnosed with cerebral palsy can anyone tell me if it has anything to do with my autoimmunitys or Graves’ di...
Xindirock116 days ago
I live in Japan. And I'm sorry to say the intravenous vitamins are wearing off a little each day. So, I hope I can make it until next week. ...
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Finally sleeping without too much pain!
Xindirock117 days ago
Hi everyone❣️I'm Xindi and I'm self diagnosed PN. I've been suffering with it on and off with it moving around my body, for 3 years...but th...
6 Replies2 Likes
I’m new here. Have neuropathy. Decreasing my intake of gabapentine. Anyone taking this medication?
ellenhamid11 days ago
I had spinal cord surgery 4 months ago and ever since i have neuropathy. Worst on my hands, feet, stomach (like the feeling of a very p...
Marijuana (Medical Grade) & Neouropathic Pain
gmonokian11 days ago
I was diagnosed with Neouropathy over 85% of of my body. The numbness was bad enough but the neuropathic pain was unbelievable. The pain had...
Neuropathic Pain & Medical Grade Marijuana
gmonokian12 days ago
Non Diebetic PN
ashishupp20 days ago
Hi First of all I want to thankful that you guys created this platform where at least we can discuss this illness.
My name is Ashish uppal a...
12 Replies1 Like
Idiopathic Neuropathy getting worse
Twitchen20 days ago
Is it just me or does the hot weather make it worse?
The cramping in my feet and legs is really bad at night.
Also, I find walking around wi...
Is anyone there?
Jangles505021 days ago
Got this nightmare pain in my ear and jaw and just been going on now for a good few years.
Trying to connectwith other people who are long te...
Tingly fingers and toes
Simonedenaya month ago
Hello everyone I’m 30yr old female new here a little nervous about these symptoms I’ve had over the pay few days. My fingertips and som...
Fibromyalgia, menopause or just age?!
Kathrynirenea month ago
Fibromyalgia, menopause, or just aging?!
Hello, I’m new to this forum. I was diagnosed with fibromyalgia a few years ago and for the most par...
11 Replies1 Like
BubbleMonkeya month ago
Hi. I'm new here (ish). I joined the group a while back and have been lurking around a bit. I've tended to post in more specific areas, but ...
1 Reply1 Like
Mucous Membrane Pemphigoid
arcr2 months ago
Anyone here have any experience with this one? It's a new, additional diagnosis for me.
Nerve pain (including Trigeminal neuralgia) and dehydration
InfoAddict2 months ago
I was diagnosed with Idiopathic Classic Trigeminal Neuralgia in January, by a neurologist. She disregarded that I shared with her that whi...
Severe body cramps..... please help
Jaffalove2 months ago
For the past 5 years I've been suffering with severe body cramps. It started out as the odd cramp in my leg or foot or arm, and I put it dow...
Neuropathy --- my story!!
Ameka2 months ago
I've been reading a lot of posts on the topic of Neuropathy and I find the one common thread seems to be... WE ARE NOT ALONE!!! We are all s...
10 Replies3 Likes
Diagnosed with Idiopathic Neuropathy
Hi, I'm new here so still getting used to the idea of talking about myself.
I'll be back in a few days to tell my story. I want to read mo...
Severe foot pain
cindylou2222 months ago
I was diagnosed with Non Diabetic Peripheral Neuropathy many years ago; given Gabapentin which doesn't do anything. I was told the reason fo...
8 Replies1 Like
Survey for the invalidation of invisible illnesses. Research to bring awareness.
marisa_c282 months ago
Hello, I am a college student living with a chronic illness. I am going to be presenting research on the invalidation of invisible illnesses...
2 Replies1 Like
Does anyone else get 'bouts' of neuropathy and other symptoms?
Peeks2 months ago
Hi, I'm desperately looking for some advice or guidance relating to my peripheral neuropathy.
Due to a new system at our local doctor's surg...
Brain fog! It seems that the fog just gets thicker to the point you’re re-reading the same page of a book over and over and over....
Jj-juju2 months ago
Hi all I’ve just written my bio which is more like my life story but it’s the first time I’ve told it willingly! This site sums me up to a ...
Black flecks and blood in stool
alice28002 months ago
Yesterday morning and afternoon I had black flecks in my stool and some small bits of red as well. This morning there is less black...
Isamar3 months ago
Hi there. My name is Jacob and I'm writing this in behalf of my Fiancé Isamar. She has been to countless doctors and specialists and none of...
9 Replies2 Likes
Non Diabetic PN
DPegg3 months ago
I was diagnosed with peripheral neuropathy and I'm not a diabetic. I'm on Gabapentin, Oxtellar xr, Alpha Lipoic Acid 600mg and one pain med ...
Non Diabetic Neuropathy and the DPN Cocktail
newma73 months ago
I am a non diabetic that suffers from neuropathy. I have tried a number of prescribed medications, ranging from gabapentin to Lyrica, all of...
Young, Sick, and Tired
cfs_warrior43 months ago
Hi. I’m Brooke. Been on here a bit but have not done an intro. I’m 21. Diagnosed with Chronic Fatigue Syndrome at 19. I have various other h...
9 Replies1 Like
parasann3 months ago
Hi all I too have PN and i am starting to trust less in doctors and take matters into my own hands...MEDITATE MEDITATE..it really helps...an...
MUSCLE WEAKNESS CAUSED BY PRN
Just want to ask others with Peripheral Neuropathy...has anyone developed muscle weakness with it...eg..extremely hard to climb stairs....an...
Just A Thought for Some with PN: Tibial Nerve Dysfunction ?
rory19574 months ago
I'll let those of you to whom this may apply internet search engine it for yourself and just consider if it might be applicable to your situ...
3 Replies1 Like
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