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Minieres and vestibular migraine

ScottishDad profile image
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I have been diagnosed by a ENT specialist to be suffering from minieres and vestibular migraines.

I feel nauseous when i am up and moving about, I feel better when just sitting or laying down, is this normal?

I am given setraline, propranalol and Omeprazole, and diazepam if required.

I feel extremely anxious over the years which I think ultimately contributed to these illnesses, this caused IBS symptoms, but since being on propranolol and sertraline symptoms have improved massively.

I feel lost though, unable to work at the moment, my eyes get sore looking at computer screen, and i end up exhausted and needing to lay down. I feel nauseous and hungry all the time, like I need food for energy, the doctor has given me Omeprazole for this and thinks I could have helicobacter, or the sick to the stomach feeling could be the meds I take. I am just not sure, I think its the minieres but not sure.

I used to do DIY house renovations at home, but not able to due to feeling dizzy and faint which leads to sugary or salty cravings. This was the first symptom i got, then complete exhaustion like I could feel the panic in my breath while trying to get on top of whatever was happening to me while sitting on the setee. The symptoms i have relates to, too many other conditions and its always a worry.

Dizziness, sore neck and head pain, sore eyes, struggling to concentrate, feeling nauseous, eye jerking or jumping randomly, tinnitus, sore ears, head feels like its in a clamp. One of my earliest symptoms were the nausea and feeling faint along with extremely sensitive scalp in one area of my head on the left side. I could not take a shower anymore due to the sensitivity, even pouring water over my head in a bath the sensation I got was like someone ran their finger up my spine feeling, but this started from my head.

One other strange thing, when I yawn I get a sensation that runs from my head all the way to my toes that forces me to move my arm and legs because sensation is that intense. My wifes frustrated as i have been shaking recently, when I say shaking I mean the leg shake to help me relax, but I have been doing this in my sleep keeping her awake, I also try and shake my whole body, it does soothe me, i was given the diazepam for that which does help a little.

Thanks for anyone who takes the time out to read my post.

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kushami36 profile image
kushami36

I’m sorry to hear you are having so many problems. Following are some suggestions that could be in addition to Meniere’s disease and vestibular migraines.

When you feel dizzy and faint, you could check your blood sugar, heart rate and blood pressure on the spot. This might show something useful.

Does it usually happen when you have been standing up for a while, or extending your arms, like when painting a wall or putting up wallpaper?

You could also do a NASA Lean Test at home or with your doctor to check for orthostatic intolerance.

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