What's wrong with me

[Chakra111]

Hi everyone, I'm looking for some advice on what might be going on with me.Iv been getting ringing in ears for past week and then it shuts off in one ear and gets louder in the other ear.

Anyone know what it might be?

Thanks

[bookish]

Hi, I see from your previous posts that you had loading doses for your low vit B12. Ringing in the ears is a common symptom of deficiency - what frequency of injections are you on, as it may not be enough.

[Chakra111 in reply to bookish]

I missed my 1st dose in January. I got the 6 loading doses in October however after each one (6 in 2 weeks)I felt ill.. Light headed, dizzy sick. So it put me off going in January. So now I'm out the loop of getting the injection.

Iv been taking Boots Vegan supplements it has 24 vitamins in it including higher dose b12.

I missed the injection appointment as I was feeling unwell. I'm generally unwell, but I know I should book in and get it.

I'm scared incase I feel unwell again.

[bookish in reply to Chakra111]

What a pity that you didn't keep having the injections. It takes time for the damage that the deficiency has done to be repaired, once you start getting them, and many people feel worse as that happens. Some of the damage may not be repairable if left too long, so it is important to get the injections as often as needed and regularly. If you have neurological symptoms, you should have continued to get injections every other day until those symptoms stopped improving. As you were vegan, it *may* be a simple dietary deficiency, but as you are still symptomatic, you need the injections. As you already have one autoimmune condition though, it may not be purely dietary. There is nothing like enough B12 in those tablets to reliably get you out of a deficiency state (and taking more would give you too much of some of the other ingredients, which are not the best forms to be taking). Tablets can raise the serum level without fixing the damage, which is why injections are a much safer treatment and why you have to go by symptom improvement and not by measuring serum (which shouldn't be done once you are on injections, as it means nothing).

I'd go back to the GP, ask them to check iron, folate, potassium as if any are low that could have made you feel worse, then either (preferably) ask for another set of loading doses, or at least book in for your regular injection. If you look on the Pernicious Anaemia HU forum, you'll see that many need more frequent injections and that it can take time to start to feel well after a deficiency. B12 is needed for every cell in the body, you cannot possibly be well without it. Best wishes

[PrettyinPink3436]

Hi. I don't know if this is helpful but there have been times when I have heard talking or singing in one ear then it would switch to the other ear. As it turns out, I was having auditory hallucinations due to the IMMENSE pressure and stress going on in my life. Possibly it could be stress related?? I'm sorry if this wasn't exactly helpful.

[Chakra111 in reply to PrettyinPink3436]

I have had that before. Sounds like there was a radio on??

[PrettyinPink3436 in reply to Chakra111]

YES! Exactly!! I don't know if the ringing in your ears could possibly be related to this situation or not but I suppose it's possible. Maybe you could schedule an appointment with your GP?

[Chakra111]

It's like people talking, it sounds like a low volume of radii on. I thought only I got that.Losing my mind.

Yes I need to book dr appointment

[PrettyinPink3436]

nope, sweetie you are not alone. It happened to me every time I laid down on a pillow. The ear against my pillow heard nothing but if I turned over, it started in the other ear and stopped in the ear against my pillow. At one point I was actually getting up and looking outside for ppl talking. Nobody was ever there. I checked the TV. It would be off. I felt as though I may be schizophrenic or something. But when I went to my doctor and told him everything, he told me it was most likely due to the amount of stress in my life. So it did go away when things settled down. But I have had it happen recently too. Again so much stress and anxiety that I guess my brain doesn’t know what to do with it all. It’s the closest thing I’ve ever had to an actual meltdown. Good luck with your doctor and please let me know what happens if you don’t mind.