Posts - Fight MPN | HealthUnlocked

Fight MPN

809 members • 260 posts

All posts for September 2016

It's Forum Friday- how do you know you're not alone?

When you're diagnosed or living with an MPN, what do you do so you know you're not alone? Answer this question on our poll to the right and then see what...

When you're diagnosed or living with an MPN, what do you do so you know you're n...

tclementi

•8 years ago

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MPN Event this Saturday

Please consider joining me at MD Anderson in Houston this Saturday OR attending live online. We'll hear the latest about all 3 MPNs (MF, PV, ET) from Dr....

Please consider joining me at MD Anderson in Houston this Saturday OR attending ...

andrewschorr

•8 years ago

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Forum Friday- share your symptoms/complications

Did you know September is Blood Cancer Awareness Month? All month long we've been sharing special videos and infographics on our FB page. The image below is an...

Did you know September is Blood Cancer Awareness Month? All month long we've bee...

tclementi

•8 years ago

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Burning on Big Toe...anybody else?

So, for three or four years I suffered greatly with a burning pain on my big toes. Mostly one or the other, centering on a spot just about the size of a dime,...

So, for three or four years I suffered greatly with a burning pain on my big toe...

Jerrymohler

•8 years ago

2 Replies

I'm new at this website

I have had Essential Thrombocythemia for 24 years. With increased doses of Hydroxeurea I was becoming anemic. The doctor switched me to Anagrelide which he...

I have had Essential Thrombocythemia for 24 years. With increased doses of Hydr...

zfatherhen

•8 years ago

1 Reply

Jplsuper

Hi I'm Jplsuper and I have been fighting MPN since 1988. The best I have felt has been taking Jakafi. All other meds caused fever, bone pain, and fatigue. It...

Hi I'm Jplsuper and I have been fighting MPN since 1988. The best I have felt h...

Jplsuper

•8 years ago

7 Replies

Are you attending our 3-part MPN event series? Let us know!

In October, Patient Power is hosting 3 different town meetings as part of a series for ongoing education. Don't miss out as each of the meetings will have a...

In October, Patient Power is hosting 3 different town meetings as part of a seri...

tclementi

•8 years ago

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It's Forum Friday and we are talking about the next year!

Patient Power recently came back from our yearly retreat where we plan for the upcoming year. Andrew blogs about it here:...

Patient Power recently came back from our yearly retreat where we plan for the u...

tclementi

•8 years ago

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It's Forum Friday! Let's talk about insurance!

Insurance, medicine costs, doctor's visits, hospital stays- it can all get very expensive especially if the healthcare system doesn't offer help. What's your...

Insurance, medicine costs, doctor's visits, hospital stays- it can all get very ...

tclementi

•8 years ago

4 Replies

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Posts - Fight MPN | HealthUnlocked

Fight MPN

All posts for September 2016

It's Forum Friday- how do you know you're not alone?

MPN Event this Saturday

Forum Friday- share your symptoms/complications

Burning on Big Toe...anybody else?

I'm new at this website

Jplsuper

Are you attending our 3-part MPN event series? Let us know!

It's Forum Friday and we are talking about the next year!

It's Forum Friday! Let's talk about insurance!

Search posts

Pinned Posts

Latest poll

Have you watched our ASH 2016 Coverage yet?

Archive