PV specialist

[Bondan]

Hello!

I was diagnosed with PV 5 years ago and I’ve not seen PV specialist yet. I know I should have. I live in Walnut Creek, CA. Does anyone know PV specialist near me or in SF Bay Area?

Thank you!

[hunter5582]

You can find MPN Specialists on these two lists.

pvreporter.com/mpn-speciali...

mpnforum.com/tsr-the-list/

[Bondan in reply to hunter5582]

Thank you!

Greatly appreciated!

[katiewalsh]

Hi. Usually you look for a MPN specialist. I’ve never seen them specific to just one type of MPN so don’t be puzzled if they don’t specify just one. You’re wise to try & have a MPN specialist. Good luck. Katie

[GardNerd]

It’s a very wise move to see an MPN specialist. Doing so will very likely make a difference in your treatment and disease progression over time. I used to live in the Sacramento area and went to Stanford very soon after my diagnosis in 2007. I figured I was in the best hands, but it turns out I wasn’t seeing an MPN specialist there. I was busy with life and work and didn’t even know there was such a thing. My doctor there, who specialized in leukemia, didn’t talk to me about interferon treatment — over the course of 16 years! I moved to another city and immediately saw an MPN specialist. I learned later that Stanford does have a few MPN specialists, so that’s definitely one option.

[Bondan in reply to GardNerd]

Thank you! Greatly appreciated!

[sinb]

I just conferred with Dr. Patricia Cornett at UCSF, MPN specialist. Very easy to talk with and spent an hour with me via Zoom. I would recommend her, older, wiser and has a team of other specialists that all work together for difficult cases Important to have a team.

[Bondan in reply to sinb]

Thank you so much!