As many of you know I've been taken off my drugs for connective tissue disease. Since then the first week or two were ok then bam it hit me. First my knuckles in my hands started to feel stiff & sore & now 6 weeks later I'm in agony, my hands are so sore doing anything hurts, my shoulders & elbows are incredibly sore & my big toes and ankles are swollen & sore. To the extent that I could only manage half of the session at college last night & got to the stage at work today where if I didn't leave early I'm not sure I'd have got home.
My GP has referred me back to the head of the team this dr is in saying I won't see the same dr after he told me fibro is cureable if I want it enough.
Tomorrow I'm supposed to work from home but I don't know if I can as I'm exhausted and in so much pain. My GP has said we can try steroids in either injection or tablet form but I'm worried that if I take them that the inflammation won't show up on my blood tests on 3rd May & the hospital won't believe how swollen & sore I am.
My GP always encourages me to keep working as much as possible but I'm very tempted to ask him to sign me off for the next week as I'm in so much pain. It's only 6:30 but I've already had my max dose of morphine for the day. Goodness knows how I'm going to sleep tonight. I'm only still up now because its my daughters birthday today (mine on Friday).
So do I keep battling on or just ask my GP to sign me off & what about the steroids? The hospital rarely see my inflammatory markers raised as my GP always does something about it. I certainly don't want to be on steroids long term again as I had to battle to lose 10kg of the weight I gained last time I was on them for 4 years.