Why are there 2 communities for Fibro? - Fibromyalgia Acti...

Fibromyalgia Action UK

59,926 members67,062 posts

Why are there 2 communities for Fibro?

jpars profile image
10 Replies

Are there any significant differences?

Written by
jpars profile image
jpars
To view profiles and participate in discussions please or .
10 Replies

One is foggys this is FA and although I am a member of both I forget to go to that one lol true bout of fibro fog so I tend to stick here where there are more people to answer questions .. I am sure Foggys is just as good but my brain really can't cope with more than one forum.. I used to be on the ibs one too that was the first one I joined than found this one ... Really it's a matter of how many sites you can remember you belong to remember to visit them... When I found this one and realised so many people here have ibs too I left the ibs one as I was forgetting to go back... There are members on here who belong to both and even more sites

Hope that helps

VG x

Mdaisy profile image
Mdaisy

Hello Jpars,

This community is part of FibroAction, the National UK charity raising awareness about Fibromyalgia Syndrome.

Please see the website fibroaction.org/ and links for further information,

fibroaction.org/Pages/About...

fibroaction.healthunlocked....

The other community is run by Foggys, please see links for further information:

foggys.healthunlocked.com/a...

Website:butyoudontlooksick.co.uk/

Here are links to Foggys Information also on the FibroAction Website within our Support Group Directory for Salisbury & Swindon:

fibroaction.org/pages/salis...

fibroaction.org/pages/Swind...

Hope this helps

Emma

irisjoy profile image
irisjoy

i find this forum is more active and the members and admin are so helpful

jpars profile image
jpars

That's brilliantly helpful thanks. I can see me using both communities (if I remember!). I have only been using Anxiety UK up to now, and the doctor said last week - sounds like you've got fibromyalgia. I had been getting burning pains which I kept getting told was anxiety. He put me on gabapentin and they have reduced dramatically. I also have ibs and he has already done all tests for 'tired all the time'. I have already been through our local very good pain clinic for chronic shoulder pain. He said most people with Fibro end up at the pain clinic, so I have nowhere else to go really. The local support monthly support group is a good 40 minute drive away. ....so that's the reason I asked and am here. Thank you very much for your answers.

Mdaisy profile image
Mdaisy in reply tojpars

Hello jpars,

Welcome & nice to have you here in the forum

If you would like to read our All About Fibro (downloadable) Factsheets, please see link below:

fibroaction.org/Pages/About...

Just out of interest maybe you would like to look at our Support Group Directory on the website, just in case there is one listed that may be closer.

fibroaction.org/Pages/Suppo...

Regards

Emma

It's a pleasure. Welcome to the site.. Though as I say to everyone. None of us would be here from choice.. But I hope you find some help here and some friends

VG xx

jpars profile image
jpars

Awh thanks guys! I've been looking through the information and, despite the circumstances, it's lovely to have found you xx

ladymoth profile image
ladymoth

Welcome Jpars!

I hope you enjoy being here with us. We share tips and helpful hints, have a good moan, and even a good laugh now and again!

I have looked at the other sites, but feel most at home here - like VG I would find it difficult to remember I belonged to more than one site!

Moffy x

Hi Jpars and welcome!

Kind regards,

Catherine

jpars profile image
jpars

Awh - thanks for the lovely welcome everyone x

Not what you're looking for?

You may also like...

Fibro specialists in Scotland - are there any?

I live in Aberdeen and am quite disappointed by my treatment so far. Willing to pay to go private...

Hi there are there any fibro peeps who have hypermobility syndrome as well as fibro?

My pain consultant mentioned that this was a rare pairing for fibro so I'm curious to find someone...

Is there life after fibro ?

Its been a long road with fibro. Sometimes I wonder how I will live with this pain as I get older....
Jedani profile image

why do i feel so guilty for having fibro?

as well as myofacial pain i have fibro,and spondylosis,and really bad pelvic pain,a woman in our...
electricjaws profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.