Is there life after fibro ? - Fibromyalgia Acti...

Fibromyalgia Action UK

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Is there life after fibro ?

Jedani profile image
12 Replies

Its been a long road with fibro. Sometimes I wonder how I will live with this pain as I get older. I have a great MD who specializes in fibro. I get trigger point injections, adjustments 2 to 3 times a month. I have tried so many tratments, diets and oils. I take cymbalta and pain meds but, still in pain. What else is there?

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Jedani profile image
Jedani
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12 Replies
Flyby7 profile image
Flyby7

I have a gel which I rub onto my joints it called fibro gel I get it from my doctor

Jedani profile image
Jedani in reply to Flyby7

What is the name of the gel? I was rx lidocain patches and someimes it helps. But would be curious to know about gel.

Flyby7 profile image
Flyby7 in reply to Jedani

It's called FENBID FORTE 10% gel I get it from my doctors hope it helps

Jedani profile image
Jedani in reply to Flyby7

Thank you. I will ask mine.

Trikki profile image
Trikki

Have you tried heat pads or TENS machine...I find both help.

Jedani profile image
Jedani in reply to Trikki

Yes, I have a tens unit which I use. Also a creme called deep blue rub. Sometimes it is just hit and miss.

My-chinaman profile image
My-chinaman

Have you tried cutting sugar out of your diet?? I found my pains got less when I took that out of my coffee also heat helped not cold though that makes me worse ...

Jedani profile image
Jedani in reply to My-chinaman

I have tried heat but still having trouble with taking away all sugar.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I've had fibro 23 years ...and yes there is life after fibro. You might need to make some lifestyle changes (pacing; exercise; learning self and pain management techniques for example)

I've been at the point where I was almost housebound ... but by learning to manage my symptoms and understanding how fibro affects me ... I now live my life to the fullest that I can manage. Some days I don't manage to do what I wanted to ...but I just accept that I can't do it and move on. Xxx

Jedani profile image
Jedani in reply to Hazel_Angelstar

Thank you for your message. I just earned my masters while working full time and taking care of my family. My MD thinks I over did it but it was my dream. I dont let fibro stop me but the enjoyment due to pain has me wondering.....

I do excercise, and diet.

Jeannie

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Jedani

Well done on achieving your masters. Xxx

Jedani profile image
Jedani

Thank you. I was driven. N

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