my NHS-physio says "FIBROMYALGIA" i... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,346 members66,394 posts

my NHS-physio says "FIBROMYALGIA" is like having a fire going on in your body.....

MrsValentine profile image
17 Replies

........then imagine the fire (accident/life trauma) has gone out but the smoke detector is still going off in the body.

Then by chance i attended a new Gp in my practice a few weeks later who gave me tablets which would help to numb the pain sensors in my brain subsequently helping put the fire out.....can you guess what happened.?..................................................................................................................................................................................................................................................................................................................................................................................................................................................the tramadol tablets seem to be helping to put out that BLAZING INFERNO that is going on inside me. Early days yet : )

Written by
MrsValentine profile image
MrsValentine
To view profiles and participate in discussions please or .
Read more about...
17 Replies

That's great that you have found something that is working :) all be it early days as you say .... Fingers crossed it continues

Good luck

VG x

MrsValentine profile image
MrsValentine in reply to

abd toes etc etc x

That is good, i too have been given medication and it has changed me as for the first time in 10 years i have practically no pain. I was on normal trammadol and it didn't do much so was changed to slow release and wow amazing. lets hope for both of us it lasts xxx

MrsValentine profile image
MrsValentine in reply to

thats good.

Love the doggie pic x

Kugagirl1 profile image
Kugagirl1

Thats good lets hope it keep working for u ,it did for me so much so it held my condishon at bay un Diagnosed. As some of my Symptoms were being put down to side afects of the drug. I still take Tramadol along with other things , i find if i combine it properly it takes away the shakes an edginess but makes me tired an listlis .

Carn't have everything can u . O an you carn't drive wile taking it ether evan low dose insurance wise :( x

Realy hope it works for u evan just to keep thing's at bay for a wile xx kugagirlxx

ladymoth profile image
ladymoth

I take tramadol and paracetamol together, and mostly it works pretty well.

There's a tablet called 'Syndol' which you can buy without a prescription, and I find they are excellent if I am in really bad pain.

They are meant for migraine, but seem to work well on fibro too. The only problem is they knock you out, so really best to be taken at bedtime. They are only for short term use according to the packet, but I rarely take more than two doses.

Of course, I take them instead of the tramadol and paracetamol, not as well!

Moffy xxx

irisjoy profile image
irisjoy in reply to ladymoth

thanks Moffy * sorry very small star xx

Maladjusted profile image
Maladjusted

Thanks for the tip on Syndol. I always have those in my handbag, as they help if I can catch the very beginnings of a migraine, but had never thought of trying them for Fibro pain. I do have a high resistance to them though, and don't get drowsy when I take them. They have been off the market for some time (along with Propain which are similar, but in my opinion better). Thankful Syndol are now back in the pharmacies, but no signs yet of the Propain

LindseyMid profile image
LindseyMid

I love that analogy! A great way of explaining it. Sounds like you have a good doctor if they understand that well.

MrsValentine profile image
MrsValentine in reply to LindseyMid

i ve been to her a few times and she has said its fibro flare which is reassuring that she doesnt think i am a fruit and nut case

irisjoy profile image
irisjoy

aha i think my fire must still be blazing hmmm or maybe its the hot flushes lol xx

ladymoth profile image
ladymoth

Hot flushes are great, Irisjoy - save me a fortune on my 'leccy bills!

Moffy x

MrsValentine profile image
MrsValentine in reply to ladymoth

i must be the olny person in winter who has the windows open...no thermostat in my body at times lol

MrsValentine profile image
MrsValentine

Burn baby BURN as a song goes (i think)

kazani profile image
kazani

Gabapentin is a lifesaver too as it works on the nerve endings n brains perception of pain. Can make u sleepy tho xx

SuzanneM profile image
SuzanneM

I have been on tramadol slow release for at least 4 years but the pain is now greater than that! Trying to get diagnosed with fibro, I try to explain that I am on tramadol so the pain is so much worse than I am feeling at the moment, think I am going to have to come off them for a bit to get the diagnosis :-( problem is I will not be able to work and I am self employed!

BenLes profile image
BenLes

SuzanneM once you have your appointment, come off your medication a few days before. I'm sure you will get the full force of your condition without them. Then you will be able to tell them exactly what your symptoms are and get a proper diagnoses. Hopefully the lack of medication won't knock you out for too many days. Good luck!

You may also like...

am i going to crash like everyone says?

my dad and myself came down with coughs we just put it down to being at the hosp at all funny hours...

Just like being on a Merry-Go-Round Fibromyalgia vs PIP

limits at me throughout. In one morning the DWP gave me 3 conflicting date-limits, I am not...

Does it sound like I have fibromyalgia? How do I get diagnosed?

work through this pain and the only thing that helps is actually to stop moving. I have seen a...

Does any body feel like the two sides of your body don't work together?

working together. My hands got very cold like I had put them in the freezer. I play the piano and...

Ashamed to say I have fibromyalgia as so many people seem to think it is psychsmatic. I just say about my osteoporosis and osteo arthritis.