I, like so many others, do my best to avoid things that make my fibro exacerbate. But how do we deal with the things we have no control of that make it worse. Today I am lost, the more angry I get, the worse I feel. As hard as I am trying to calm down I just cannot and I seem to be going around in circles, so I thought maybe some support here may help. I shall tell you why. My daughter has in all had 7 UTIs since 21st September. One so bad because her bladder has stopped working that it put her in hospital before Xmas and seeing herin resus and me being told I was worng her bladder was empty, only for them to do an ultrasound to shut me up and discover her bladder was so full it was at risk of bursting plus the urine was backing up into her kidney, not good. Her body had started to absord the toxins and we could not rouse her, rushed in on blues and twos, I think I have mentioned it before. Whilst in the hospital they cleared her out and with 24 hours she had yet another infection, so they cleared her out again. Since then she has had two more making her very ill over the holidays. Today she went to Urology for a follow up appointment, it should have been her first appointment but due to ending up in hospital they switched it to a follow up to save waiting months for another one. Her dad took her and mother in law gave them a lift. I was not well enough to go anywhere and can barely walk right now. She went in when called and sat down. Then the urologist looked up and said to her 'You have NOT had any infections, do you want to speak to a psychiatrist, you really need to talk to someone' and she sat there with her mouth open. She said to him that we had proof via the nurse, GP, ward doctors and the results of their own hospital labs. He was not having it and he has refused to put her on a profilactic antibiotics to prevent further infections. Anyway, she has to have a test done to check the pressure in the bladder and we feel he is only doing that to try and prove a point, which I know he is going to fail miserably. She was scared to tell me as she knew what it would do to me. I WILL be going to her follow up appointment even if I have to crawl and I WILL wipe the floor with him in such a way he won't know I have done it until I have left. The only good thing I learnt growing up was how to insult someones integrity without them even realising sometimes until hours later. So folks, you can see why my fibro is through the roof tonight. And another thing, we are obviously not alone as fibro sufferers having people think IT IS ALL IN OUR MINDS.....my daughter is going through it for an entirely different set of symptoms, I would consider not being able to pee very significant. Sorry I really needed to rant about that and now I am going to go and find some light hearted banter on here to cheer me up. Love you all and so sorry it was a bit of a mixed blog, but to be honest I did not know where else to turn except to all of you on here xxxxx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.