Blood Tests!

[HorsemadJo]

Ive just had my blood tests results come back normal....Fibro it is then.......Here we go...new life for me!

[Saskia]

At least having a name to put to all the various symptoms helps in a very small way, HorsemadJo. Now there is the steep learning curve of first accepting the diagnosis and then the even steeper curve of learning to live with it and manage it. For me, it was like a bereavement as I had to take early retirement eventually, after several months of struggling to carry on working, and this made me feel washed up and useless.

10 years on and I still feel pretty useless sometimes! However I must say to you, by way of encouragement, that my life is far better now even though I am in constant pain than it ever was when I was working. I have the time to appreciate the small things in life ( eg spring bulbs emerging) the birds at my feeders in the garden. I have 2 cats who I can take time to cuddle and, since retiring, we have adopted 2 rescue dogs who get me out and about so that I am not completely cut off from the rest of society. Sometimes it is a struggle to walk round the fields with the dogs but I make the effort unless I am really feeling terrible, in which case my husband walks them on his own. When I first retired I was almost reclusive for about 2 years. I just could not face seeing anyone or talking to anyone on the 'phone as I felt a complete failure. Now I enjoy people again, but only in small doses as I don't have much energy.

Your situation may be completely different to mine so the adjustments that you have to make may be worlds apart from what I have had to do.

This is a bit of a ramble I am afraid, as my mind is a bit of a butterfly flitting about in an incoherent way sometimes! BUT I just wanted to encourage you to move forward gently as you adapt to your diagnosis. I had never heard of FMS until I was diagnosed with it and I didn't know anyone else with it so was struggling in the dark on my own. Now there is more info. about FMS which is helpful and, although I only discovered this site a few weeks ago, I have found it very helpful in that we can all share how we feel in a safe, non-judgemental environment and we can offer support and encouragement to one another.

Take care of yourself, Love and hugs Saskia XX

[Hidden]

Hi Horsemad and snap! just had exactly the same thing happen to me today!

[HorsemadJo]

Its so frustrating....How long have you suffered?

[Hidden]

Quite a while really but only very badly for the last year.

[HorsemadJo in reply to Hidden]

Oh dear....Me too. Had a really bad cold and cough 4 weeks ago and this has brought it to light......had it for the last 15yrs and not really known that i had got it! Had a couple of flare ups but put up with it. It was doc that told me i had it...he suspected that bloods would be normal. This has just confirmed it......Not great as i have a family, horse and a dog!!!!

[Hidden]

Much the same story here.... I have a family including a little grandson and three dogs! I am only in my late 40's but feel 90 some days! I am determined to stay positive and deal with this.

[HorsemadJo in reply to Hidden]

I am in my early 40's and feel 85! xxxx Keep strong....What are your symptoms?

[Ozzygirl64]

I have had it for 26 years now and I do not think you really get used to it, just when you think you have it throws something new at you. But my GP states that mine is chronic so I began to believe it could not get any worse, how wrong I was. I think we can only stay positive and take each day as it comes, rather than go down the 'what ifs' route xxxxx

[Hidden]

Ozzy girl ...I agree with you.

Horsemad jo....various symptoms from pain, soreness, weakness in my limbs, tiredness, unable to sleep properly and waking tired even when I do. Clumsiness and forgetfulness, no concentration. It varies from day to day or hour to hour!

[fairycazzie]

HI HM i have to agree with words above as i have suffered unknowinkly all my life but yet managed good bad upss/downs then diagnosis this year only from 2010 things became a constant struggle just as i was building something up i really enjoyed to be taken away from me , but yet i did not give up hope and i still not giving up as i decided to go along another path and only into 2013 will i know whether ite ends there or blooms with me behind the wheel.

you have to just pace yourself and learn how to deal with each thing thrown at you and there is many things to help and many on here to help you too to understand that some things you may suffer are a part of your illness, but yet do not ignore things that are new.

Best wishes to you

do a bit and rest and so on .

hugs caroline