Doctors passover...

[jackie1964]

Went to my doctors yesterday, every doctor is just passing me off and i just don't seem to get any where, my resent visit shut me down completely when i started to tell the doctor how i felt she turned to me and said 'what exactly do you expect me to do for you today' hello i wanted to scream HELP ME, more so i want them to put it in my records that i have Fibro and not keep telling me ive got it, im due a review with my DLA , and every time i reapply i have to appeal against there disision, i have to sit in front of a panel of people and prove that im unwell, i always end up breaking down, i cant get anyone to understand how painful and depressing this condition is, i want so much to be ok to work but struggle to walk up stairs by 5 o'clock in the evening let alone go out to work ,id never make it up the stairs,Is there anyone out there that has struggles with getting help and being believed, My doctor has never offered to send me to see a specialist,ive had Physio but she stop treatment as i couldn't cope with the pain, she has referred me to a romatoligist but that was a year ago and im still waiting,I just dont seem to be able to get help...

[Extremelygrumpy]

I too have had exactly the same experiences as you at gps, it really is a case of trial and error and changing. When I moved to this area I found a gp who believed in fibro, was so relieved ..... Then he retired i dont think it was down to me.....I was passed to the gp who has all the fibro patients in this area!!!!!! And when I had to see another gp at practice last week he gave me antibiotics which I needed AND then said oh you have fibro, let's try you on this as well for pain as you can't tolerate opioids .... I left gibbering thank yous in total amazement . 3 gps at same practice all recognising fibro...Mind you this has only been in the last four years out of the 22 years I have had fibro apart from the original gp who diagnosed me all those years ago. So please don't give up try every gp you can.

[jackie1964]

Thanks VG, its very distressing when you being passed of all the time, i was first told i had fibro 4 years ago after 2 years of test that showed noting, ive been on Amtiriptyline 25gms 4 times a day for 3 years and last month i was also given Fluoxetine 1 a day, and water tablets, i was also on codydramol which made me drossy and upset my stomach so went on Paracetomole i take lansoprazole to help calm an hunia , agrevated by the meds ,i dont go out after 5 as its to painful to socialise, im 47yrs old and feel life is over but do live for my grandchildren,ive put weight on because im not phisical and keep being told to lose weight to feel better, i cant exercise the way id like because of pain so put weight on its a circle that i cant get out of, and i just dont feel as if im getting the help i need, I understand that for years people have abused the system and i feel im in the catagory that is being peniised for it and cant get anyone to believe me .its so fustrating....im not going to give up and i will fight...Ive no doubt i will be called in to medical boared soon, its just stressing me out, any way thanks for your message ...

[Ozzygirl64]

I am fortunate to have a very understanding GP that fully understands fibro so on that score I cannot complain. I would say it may be time for you to change practices if you are being fobbed off the way you are. I would not stand for that. You need someone who cares about the patients, not about the wage packet at the end of the month xxxxx

[Hidden]

Jackie try chasing up the referral at the hospital, sometimes the appointments get lost along the way. Failing that tell your GP you haven't had your referral and it's been so long. You are entitled to a second opinion.

Could you perhaps see another GP at your surgery, this might be an idea to help you.

(((hug))) xxx

Libs

[fibro]

I thought we were entitled to ask for a referral to see someone. in the past I have never been asked if I wanted to, until I met my current GP, he may not be an expert in Fibro, but he will happily refer me if necessary. I'm currently waiting to have my carpal tunnel done, but in the mean time ip he offered did I want the other hand tested, but I declined as I thought it was ok, but I think I am gong to need it soon as I can feel some of the same symptoms.

I do hope you managed to get through t your doctors. I know it isn't easy as over the years I have met some not so nice ones!

they don't give you enough time at an appointment to explain what you want from them, so I have in the past written to my GP beforehand or taken a bulletpoint letter with me and a copy for him and we have gone through it together.

some GP surgeries will allow you to email a letter, that way it gets there quicker, but do ask for a referral xx