In answer to all the queries about whether you'll get these benefits, I was told:
ALWAYS PUT HOW YOU ARE ON YOUR WORST DAY.....OR YOU'LL LOSE OUT
This means, if you're in bed only one day a month and need help to the loo etc..... YOU PUT THIS....... I need help getting in &out of bed. I need help gettin to the toilet. I spend up to 24hrs in bed.
If you have to choose: yes,no or varies, always put :no I can't do or yes I need help. Never put it varies except on the last page for other additional notes, then if u are up & about, you can honestly say, this is a very good day but I will suffer for the rest of the week.
I was told this by my social worker & sofar haven't needed to appeal or have a medical. Obviously your doctor needs to be on side too so make sure you've had a few home visits whilst you're in bed. It's not lying, like those that cheat the system n then work. We DO NEED THE BENEFIT & HELP. I haven't been able to work for 5 yrs & as a single mum need any extra cash possible. (My ex had a midlife 'woe is me' crisis, couldn't do the 'insickness & in health' n left)
Ask your local council for an assessment(play it on a bit) then u can get extra money from them & use the assessment as back-up evidence for your dla & ESA.
Goodluck to all. Get intouch if you need more advice or contact citizens advice