Esa: Hi I have been on esa since 201... - Fibromyalgia Acti...

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Apmcoy profile image
16 Replies

Hi I have been on esa since 2014 ,I had a home visit for my health assessment in 2015 and as I was in bed poorly and I forgot about the app when they came they knocked so hard at the door I didn't answer it I panicked and they stopped my money emediately I then contacted c.a.b and they put in for a reconsideration and I was out back on esa I suffer from severe agoraphobia depression and anxiety I also have copd and a spine disease and asthma I had another health assessment 3 weeks ago and still haven't heard anything I am at my wit's end with all this

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Apmcoy profile image
Apmcoy
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16 Replies
rosewine profile image
rosewine

Not a nice situation to be in just before Christmas/New Year but unfortunately with t he holidays there could be a delay. The assessor has to complete the report and then it will be decided on by someone else and then the decision letter has to be done which can all take time. It also varies from region to region according to how many assessments are having to be carried out.

The only thing I can say in comfort having just been through this process with PIP that at this time there is nothing you can do to change anything. It is best to tryand out it to the back of your mind until the New Year. It could be a good result so it will mean you have worried unnecessarily. As you were granted it beforehand assming your condition hasn't unfortunately improved hopefully you will get the same decision. Fingers crossed for you and do let us know how you get on.x

Apmcoy profile image
Apmcoy in reply to rosewine

Hi rose thankyou for your advise really helps I'm just feeling a bit low at the min this has been going for long I've been waiting since 2014 to be put in to a group it's just too much stress for me as it will for all people going through this torment .Hapoy xmas hunni and thankyou again

rosewine profile image
rosewine in reply to Apmcoy

Best of luck with it all.x

Janet28 profile image
Janet28

Hi Apmcoy I just noticed you have only recently joined us so firstly I would like to welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I see rosewine has given you some fantastic advise already that I can't really add to except to say Please try not to worry as that won't change anything my friend, except to make you unwell. What will be will be but I'm sure it will be fine. I look forward to chatting with you on the forum.

Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

fmauk.org

Peace, luv n light

Jan ☺

PS. I advise you to lock your post to keep your information safe from the internet. Pls follow this link to simple instructions on how to lock. You will get more replies on a locked post too.

healthunlocked.com/fibromya...

Apmcoy profile image
Apmcoy in reply to Janet28

Hi Janet thankyou hunni I took Virgos advise and rang them the person on the ohine said it was with the decision maker now and to ring back on the 29 th of December if hadn't heard from them she also nit worry about it as there was nothing negative on my report How would she know this anyway it's just a waiting game but it has me in bits I'm feeling verry low at the min which doesn't help happy xmas and thankyou

Virgo1 profile image
Virgo1

Hi again.

Try not to worry to much. They probably have the report in front of them.

Telling you to ring back the 29th December is a bit odd there not open between now and then.

I don't think you should worry to me it sounds quite a positive reply.

When I phoned about mine one lady at DWP said they hadn't got the report but I wasn't convinced as she seemed to be just trying to get me off the phone.

I called back an hour later and spoke to a lovely man who gave me my results ESA Support Group .

Sometimes it is whether they want to give the results or make you wait.

Try and enjoy Christmas .

Virgoxx

TheAuthor profile image
TheAuthor

I want to sincerely wish you all the best of luck with your outcome my friend.

Apmcoy profile image
Apmcoy in reply to TheAuthor

Good morning author thankyou for your kind words .I am so thankful I found this forum for many years I've felt so lonely and isolated but feel now I have found some friends..I'm been feeling pretty emotional lately i cant believe for so many years I've suffered and now I have someone to understand I'm in a bad place at the minute can't stop crying but I know that friends on this forum will help through this .I wish a verry merry Xmas dear friend and a better new year take care and thankyou

kmc-cudsleepforaweek profile image
kmc-cudsleepforaweek in reply to Apmcoy

Hi, I have just read your post & I wanted to reach out. I'm so sorry you're feeling low (hopefully not so much now?) I'm fortunately through my ESA & PIP assesments but the waiting was horrendous, I thought I had a good handle on it, not outwardly worried & managed to keep it together internally too! But I hadn't, every negative was compounded by it. I felt like I had the world on my shoulders (literally). I just had to keep myself in check.

What I'm (poorly) trying to say is that we have more strength than we give ourselves credit for. Look at what we go through daily! Couldn't see one of those buggers do it for a day.

Don't let them deprive you of a seconds comfort or happiness. Enjoy your Xmas huny & keep reaching out, this place has dried up many a tear for me.

Lots of love. Karen xx

Apmcoy profile image
Apmcoy in reply to kmc-cudsleepforaweek

Good morning kmc and happy xmas hunni .Thankyou so much for your caring words .I can't believe how much better I feel since fi sing this site only been a few days and my feeling of loneliness seems to be fading I am sorry that you also had a bad time and hope things get much better for you have a lovely day my friend lots of love Sandra xx

TheAuthor profile image
TheAuthor in reply to Apmcoy

Merry Christmas my friend and good luck to you x :)

angiesmith50 profile image
angiesmith50

Stay strong. It really is disgusting what they are doing. I'm going through the same at the minute too. Good luck xx

Apmcoy profile image
Apmcoy in reply to angiesmith50

Hi Angie thank you hunni for your mess and I wish you good luck too .it really is a stressful time , waiting for the assessment in the first place is hard enough going through that is almost impossible trying to explain to a complete stranger your feeling and emotions ( well I found this so difficult) and then having to wait so long for a decision is dreadful my nerves are all over the place but I at least feel a bit more possative because of kind words from people on this forum .I wish you a merry Xmas Angie and hooe you get some good news soon xx

angiesmith50 profile image
angiesmith50 in reply to Apmcoy

Thank you Apmcoy . Yes it is really stressful and that's something you don't need when your I'll. I have been through the pip assessment a couple of months ago so I thought I'd be ok doing esa but no. I'm worried sick about it. I'm waiting for my assessment day.

Yours does sound positive from what you have said so I hope you get good news. Good luck angel. Let us know how you get on. Take care and merry Christmas xxx

Apmcoy profile image
Apmcoy in reply to angiesmith50

Hi Angie I wish you all the best with pip the system does not make it easy for people making claims for pip or esa unreal what we have to go through.i didn't even know I should of been put in a group it was the lady from cab who told me that after being on esa for 13 weeks I should of been getting extra money I don't know how it works .I don't know if I get put in a group if it will be back dated to my original 14 weeks or if it will go from my reconsideration date last Nov good luck Angie and thankyou

Apmcoy profile image
Apmcoy in reply to Apmcoy

Sorry Angie I mean good luck with your esa hunni xx

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