my life in repy to susisparkle

i have suffered from fibro for about five years now, for the things that you are about to go through your greatest weapon is your family and your support from friends, i pray that you have that support, i would say get them all to read about it, not having that will be so hard on you. the amount of people who are driven to were they feel that they are going mad is unbeliveable due to partners friends family who don't support them, who have doctors who tell them that it is all in their heads is discraceful mine included, i was recently in a mental hospital due to trying suicide the amount of women who were there couldnt cope any more, nobody belived them doctors taking them of medication them shaking and crying with the pain couldnt have been more obvious that they were in dispear? i snook them some tablets to help them, crying wanting there friends family partners to give them a hug saying I will look after you, your support group i hope is strong, coping with what it will do to you mentally is so hard, ive seen myself sitting on my bed rocking crying with the pain, i thought that no~one would be left in that pain, dogs would get put down if they were in that much pain, but what you have to do is just take one day at a time tell your self it will ease my pain never goes away but i have differnt levels what i call my everyday pain, isolation is another thing don't fall into that, in pain don't want to see anyone just lie in bed, with everyone the common theme of isolation usually starts at turning down an invite, being sore thinking i don't feel like going there, eventually people will stop asking, sitting with friends who don't understand or dont accept what you are going through, get them friends out of your life if you tell a friend something they should without question take in and understand what your saying is true, you'll stop calling friends as you'll end up feeling as if your just moaning all the time so you stop talking to them, don't fall into isolation because it ends up your mentall health will get so much worse, try to set a goal for each day if you dont do it so what but try, even it it only a five minute walk, going for lunch with a friend, anything as these things are as important as any medicaton in helping to deal with fibro, look on line read as much as you can, change your doctor if the one you have is'nt helping i did, it will get you down so down but you have to fight it even though you may feel that mentally and pysically your drained, little things can turn out to be a struggle but try even though somedays you might not suceed, see what your rights are, i am going to the doctor to demand that i am reffered to the pain clinic, some people heart attacks i have read from blogs seem to be abit of a common thing, i had one maybe because i wasnt cooking properly to easy to order a takeaway or eat micro food as i was in too much pain to stand and chop and do all the other things etc, sorry if this depresses you as i dont mean to. Please if what ever tablets you may be on don't feel right demand something else to try doctors seem to throw the same tablets at everyone antidepressants lyric tramadoll demazapam etc they all have side effects, doctors don't know what to do with fibro of course your depressed your life have just changed for ever but fight it its such a struggle, if you dont beat it one day so what you'll win the fight the next day maybe but keep fighting as that also seems to be the main thing that people talk about and you have too i gave up once but today tomorrow and the next i'll still not let this thing that has taken over my life win again, fibro seems to wear people down, whether it be pain, mental rollercoaster, isolation, lack of sleep, side effects of the tablets. No wonder people feel worn down, but i hope and pray that you are a fighter with good support around you, you say a prayer for me doesnt matter what religion i'll take a prayer from anwhere, you never know it may help and i wil say one for you i hope that this has'nt been just a load of dribble and you might find something in it helpful, and well get a dog if you havent got one go to a shelter and get a old one that doesnt need that much walking as they lift your spirits so much, any way time to say goodnight hope things work out for you. hagi x

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  • Hagi you have certainly opened my eyes , about 2 years ago I had a smal breakdown ... Lost hours of time came to in casualty with police guard.. Apparently I was banging my head on the kitchen floor and pulling out my hair in clumps ... The drs and police told me to pull myself together as I didn't want to end up in a phychriatric ward.... At the time I would have welcomed it gladly... After reading your post and how people, we're treated I am glad I didn't... All that happened was my meds were withheld for hours I was in agony, got taken home in a police car In The early hours of the morning ... When I went to my gp a few days later the report to him from the hospital was I had been beaten by my husband !!!!!!! WHAT.... I was offered a woman's refuge but refused it and I had a bad attitude...... I know I was out of it .... But I certainly don't remember that interveiw all I remember saying to the dr I saw was I need my meds I am in so much pain... Did I actually go to hospital or was I in an atos interveiw.. From what I have read and experienced both seem as bad and totally fabricated... Fortunately my gp believed me and got me on better meds and although I have bad days there have been no more episodes like the one above.

    Hugs and best wishes

    VGx

  • Dear Hagi - I am so touched by your openess and willingness to share. You are so right about the mental rollercoaster. I also empathise and experience the attitudes and comments from friends and family that just don't 'get it'! I am fortunate today (at this moment in time) - my pain is manageable and I feel slightly less fatigued than yesterday. I am sending you love, hugs and prayers. xx

  • MY LIFE SINCE 1989, IN A NUTSHELL. DONT HAVE THE ENERGY THESE DAYS TO WRITE SO MUCH BUT EVERYTHING YOU HAVE WRITTEN IS SO TRUE. AS THEY SAY BEEN THERE,DONE THAT AND GOT THE T-SHIRT. JUST EXIST FROM ONE DAY TO ANOTHER. LUCKILY HAVE MY HUSBAND HERE TO HELP. WE ARE BOTH RETIRED NOW, ALTHOUGH I HAD TO TAKE EARLY RETIREMENT WHEN I WAS ONLY 52. NOW HAVE DEVELOPED GLAUCOMA. OH WELL, JUST ANOTHER THING TO STRESS ME OUT`!!

    YOUR EXPLANATION WAS DEAD ON THOUGH, WELL DONE.

  • hey well done you to be able to share your story and to be able to concentrate to write all that, i get bad bouts of fybro fog and forget so much! but i sure do understand were your coming from, with the pain and frustration, mentally and phsically! i have also been living with the dreaded fybro for more years than i care to rember , good luck to you and gentle hugs to all you suffers xx

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