Is Fibromyalgia hereditary?, my Mothe... - Fibromyalgia Acti...

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Is Fibromyalgia hereditary?, my Mother also had it, and now it seems my Daughter has many of the signs.

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lalumsden
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13 Replies
julieevh profile image
julieevh

Oh I do hope not, I would hate for my daughters to have to go through this.

Julie xx

Their is some thoughts that it does follow down the female side but not been proven as yet. xx

Hello

Well this is strange, my mum had fibro, and I work with two girls

Both in there early 40s both of there mothers had fibro, I'm,in

My late 50s

All of us at work have been through stressful times, so who knows

I hope your daughter does not have this nasty thing I think it's one

Of those things maybe its the way our body's handle stress, I don't

Think it's passed on myself I don't think we know enough about

Fibro

Myself I have had the worst two years of my life with the pain and

Being so very tired, but for the last two months my pain has almost

Gone, I have gone from taking 450 tramadol to 50 now that just proves

How very strange fibro is I don't expect it to last but then who knows

Love Viv

rosylyn profile image
rosylyn

i think it is genetic my niece has it now. just not nice ppl . very hard to lead a normal life i have lost my s.o.h just find it hard.

xxx

MariG profile image
MariG

I've got fb and my son has hyper mobility, I asked the rheumotologist in Alderhey hospital if it could be fibro but they said no straight away! but i personally still question this.

Shads profile image
Shads

I really hope not but do wonder about genetic link as i've 2 cousins with it and my paternal grandmother and aunts on that side of family all had/have rheumatoid arthritis or screws as they all call it and had various joints etc replaced - wonder if they also had fibro but maybe not known as that back then (30/40 yrs ago)

best wishes, shads xx

ArctoLindy profile image
ArctoLindy

I think it can be genetic but probably not in every case. My Grandmother had fibrositis and I'm pretty certain my mother should have been diagnosed with fibro as she had all the symptoms, though sadly she was told she was imagining everything :( I've had fibro pretty much my whole life so it certainly seems to be having an effect on my family.

ginge profile image
ginge

well i have it,, i have 2 cousins who have it, my son has m.s. and im trying to tell my daughter to see a gp as she has a lot of leg probs like me and other symptoms, and a few days ago her daughter [my grandaughter] who is 8 yrs old was complaining of leg aching and pain in the same places me and my daughter do.......

jools56 profile image
jools56

I've got a couple of theories. It wasn't until I found myself resting my hands up on my shoulders on the opposite sides that I remembered my Mum doing it. When I asked why, she said "It's my Fibrositis". This was back in the 60's when it was known by that name. My other theory is that it's triggered by surgery. I had carpel tunnel decompression op in July 2009, and my aching arms/shoulders started in about Sept. I dismissed it at first as due to helping my other half with a big decorating job at home, a lot of roller painting, and me not being used to it. But the pains didn't go away, and if I did anything involving lots of arm/shoulder movement, it got worse. It wasn't until my first major top-to-toe flare up I realised there must be more to it. I assumed polymyalgia, as I'd known several people who'd had it. But blood tests were clear, and my GP said "We're looking possibly at Fibro, there isn't a cure, it is a question of managing the condition." Amitriptyline at night is helping. Full flare up is only cured by co-codamol or tramadol, and sleep with elec blanket turned to max! I call it "all over migraine" because I used to suffer from that; it has its similarities. Wonder if there is a link?

Shads profile image
Shads in reply tojools56

I used to get migraines too Jools and thats a good description - they've miraculously decreased hugely over the last 2 years since i had to give up a job i loved but it was incredibly stressful and also since menopause kicked in properly ( i always knew they were definately triggered by hormones and stress/tiredness). xx

jools56 profile image
jools56 in reply toShads

Yeah I agree with you entirely Shads, when my migraines were bad, I knew that if 3 factors collided there was a good chance I'd have one. It was always just as my period was due, being tired/stressed, and doing too much computer screen work. In the end I got to recognise the first signs, and if I got in right away with pain killers, I could head it off. I've not had any since completing menopause. The Fibro behaves the same - if I get achey, but rest a bit and take pain killers I can usually head off a full flare-up. Also I used to get terribly cold/shivery when a migraine took hold, and fibro does the same if it catches me out.

marg54 profile image
marg54

Yes i honestly believe that fybro is hereditory,my mam died in the late 80s,and for days she always seemed to be asleep or as my dad and myself both used to say she was winging again,then she would have days when she seemed ok,i must sadly admit that both my dad and myself always thought she was pretending.she was always moaning she was in pain.i was diagnosed with fybro in the 90s after recovering from a very bad car crash and to this day i sleep at the drop of a hat i moan im in constant pain,and when i looked at it im just the same as my mam,she was only ever diagnosed with arthritis,i when i was first diagnosed was under the top specialist in the country who specialised in Fybro and ME,and i asked him about my mam and that i was now suffering with the same ailments as she was,he did say to me in some families it can be hereditery.I now live with the sad fact that i never could say sorry to my mam for not believing her about how ill she was.

nicely profile image
nicely

i really think it is heredity my nan was always complaining of figity legs and she had fibrositis which it was called in those days

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