Has anyone read the article on thyroiduk website stating fibromyalgia is basically hypothyroidism. CFS info there also. VERY INFORMATIVE

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Hi I couldn't find it however I did find something else which is gearing me to ask some questions re the issues I have had allergy wise of late...Re vit d capsules I was on in the summer and possible allergy from an ingredient of imported unlicensed in the UK capsules which I had been perscribed...I need to check with the pharmacy on monday however I think it was what I took.

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If you go to the thyroiduk website then click on related conditions and the Fibromyalgia, a medical mystery solved by Dr John Lowe. I think many GPs tell there fibro patients their blood tests are normal for thyroid hormones, however thyroid patients are battling with these tests themselves as they do not reflect the thyroid health at all. Speaking as a hypothyroid patient with all blood tests showing "normal" thyroid function it is a real problem. Fibro patients and CFS patients would benefit from looking at this angle and finding a good nutritional therapist. I can recommend Kathryn Alexander and you can visit her website and even have a skype consultation with her very cheaply.

[Extremelygrumpy]

I couldn't find it so I just googled hypothyroidism and went to symptoms and although it does mention a lot of fibro symptoms I couldn't find any that mentioned the pain and tender points and muscle spasms.... I have tried so many miraculous diets for fibro.. Done fodmaps and still going down gluten lactose dairy free way, and I actually am worse ATM . Have had fibro for 20 years plus and tried so many diets supplements and lifestyle changes and nothing except gentle exercise before I got arthritis has helped.. I think now my body is too cream cracked to get much better.. Sorry if I sound rather negative .. Am very sore today.....

VG x

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Please be careful. I went down the thyroid line.of research and.took something (not thyroxine) to stimulate the thyroid gland to produce more. Our condition fluctuates though and we can't predict when our body's will be under producing or not. The result.for me.was some major panic attacks. Reaaaly horrible ones. The fact is this condition is down to toxins which are blocking the normal functioning of.several glands and organs. By added more toxins in the form of.medications we are actualy putting the body further out of whack. Obvioly if blood tests find problem it has to be treated....but there's good reason why they don't treat borderlines. We can be so desperate for answers we can fire off on one issue without considering the consequences for the imbalances we're creating. I've found it much more beneficial.to search for m own personal toxic triggers. Foods and chemicals.that are causing imbalance, Have a look at the Lectin story (which does google) and acid and alkaline food charts (which also google). I also have monthly bio resonance.which supports the body in re balancing......and have just started using far infrared thermal treatment to begin the process of detoxing. I'm beginning to see the light at the end of a very long dark.tunnel now. My organs are beginning.to respond, my weight is starting to return to normal and my sleep is improving. I take Q10, magnesium D3 cod liver oil and a multi. No other medication..... And keep to a strict detox diet. Most of the time now I have little pain. It can flair if I'm stupid and eat pizza or.something lol but I can normally pin point the cause now. The cold, damp and thundery weather is still able to.bring on aches but heat is.normally all.that's needed now. I have. The occasional paracetamol. I'm not saying I've found a cure.... Just an obvious cause....which I CAN manage now. So all I'm saying is be careful with adding to the toxic mess . You might not like the result x stepper

[sue57]

Is this just another attempt by so called 'professionals' to poo-poo our symptoms? I have had numerous thyroid function tests and they all come back as 'normal'. I am now trying the palaeo diet to see if that helps my pain. I avoid all starchy carbs like the plague, because of T2 diabetes and to see if it helps my fibro. As yet....nothing!!

[Matrix]

Hi i went to see a specialist a few years ago and he said i had it bad put me on a sliding scale of thyroxine up to 250mg and guess what ? well i felt great ,i havd energy life was good then my doc got scared and said i couldnt have it and guess what? yes life is hard no energy dragging around pain beyond the scale .xIm also no pre diabetic my weight keeps rising im eating less whats going on .

[1605- in reply to Matrix]

You need to fight...see another doctor, make a fuss. Complain. Don't let the blanket protocols that doctors are told to use ruin your life. All the best.

[Matrix]

OOps that should read i am pre diabetic .x

[julieevh]

I'm on 225mg Thyroxine and feel bloody awful, having CFS and Fibro as well as the underactive thyroid.. Ohh just imagine if another 25mg of Thyroxine would make it all go away ..... somehow I don't think it is that easy sadly.

The thyroid test is a very old "one size fits all" sort of test and is meant to be used as an indicator; but the vast majority of GP's are not as up to date with Thyroid as the might be and take the good onld bog standard thyroid test as gospel. I wish I had the money to go private and get it all properly diagnosed and treated .... but I'm waiting for my lottery numbers to come up still!

Julie xx

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I understand the problems of searching for information and answers as I am trying to sort out a thyroid problem with doctors saying thyroid hormones normal. I too suffer many symptoms you all are describing and agree adding toxins are not the answer and have been on a 2year detox following the Gerson therapy. I have found somebody called Kathryn Alexander who is a Gerson therapist and after talking to her for half an hour she explained many things. I would advise getting her help; worth every penny and not expensive! Thyroxine is the standard treatment offered by the doctors and isn't effective I have discovered. The tests also are useless so I am NOT advocating thyroxine or accepting the thyroid tests used as standard.

[Bacaloca]

I am on Levothyroxine 200mcg's a day, my underactive thyroid was diagnosed long after my fibro. My dose varies between 200 & 250mcg's depending on how I am feeling. If I get very tired my GP will put it up then when I feel better he lowers it again. It does nothing for the pain but at least I have a bit more energy to complain...