my daughter is 16 and has cf, she is in content pain and discomfort, but has now started losing her hair this is a new symptom is it normal

[peachieplum]

[hamble99b]

hi, I'm so sorry your daughter is having such a hard time. Please continue to visit this site and ask away. we all visit at different times, days , so if no-one responds straight away, someone will respond. I am sending you both a gentle hug [[x]]

Some meds can cause hair loss, as can stress, what is she taking?

regards,

sandra.

[Hidden]

What a shame for your daughter. I have lost some body hair and have been told that it is probably because of my Fibro. However, there could be a number of causes of your daughters problem including vitamin deficiencies, medication side effects, stress and other co existing conditions. I think I would persuade her to go back to her GP and ask them to run some tests. I do hope that they are able to help her. Jane x

[julieevh]

Has she had her bloods checked for vitamin defeciencies and for thyroid problems?

Bless you both xx

[peachieplum in reply to julieevh]

All of her test have come back fine but she gets them done regularly at her appointments, this cold weather is as you know a hard time for her but she is coping as best she can, thank you for reply x

[fiona2510]

So very sorry to hear your daughter is having so many problems.

I have recently lost all my hair. It started with a very itchy scalp... The Dr gave me a lotion to put on at night that did no good and then my hair started to thin at the sides above my ears till i was bald there and then it fell out all over, my curly hair was down past my shoulders, it took about a month before it started to grow back in but, i was referred to a Dermatologist and he gave me a prescription for 4 beautiful human hair wigs...

They put the hair loss down to Fibro and stress.

I really hope this doesn't happen to your daughter as it would be very distressing for her..

Hope all goes well and your daughter recovers.

Hugs to you both Fiona XXXX

[peachieplum in reply to fiona2510]

Her hair started to look thin 2 weeks ago then started falling out around temple and ear areas, she is trying to wear her hair so that it is less noticeable, thank you for your reply I will see GP about it again thank you x

[Precious44]

I also have started loosing my hair, it comes out almost in handfuls. There are shampoos and conditioners that have Biotin in them, I started using them about 2 weeks ago and it has helped, you can also take Biotin. I have fibro and Parkinsons and the side effect of one of my PD meds is loosing hair. I'm going to talk to my Neurologist and see if there is something I can take in place of the one with the side effect. Hopes this helps.

I give hugs to everyone I write to, these will be very gentle hugs.

hugs,hugs,hugs

Precious 44

Kathy

[peachieplum in reply to Precious44]

Thank you so much it help to have others to talk to, soft hugs peachie x

[Cat53]

CF stands for 'chronic fatigue' yes? My grandson has this too. His skin is getting blisters all over him. However someone we met two days ago had ME for 8 years and she felt that diet played an important roll, lifestyle too. Some form of overload in the stress department. She dashed here and there playing all kinds of sport, didn't eat properly etc. She stopped eating wheat and dairy, red meat except for once a week, potatoes and alcohol. She also started taking Royal Jelly. Liquid, not tablets. She swears this is why she is now a pocket rocket. We are going to try the Royal Jelly route although he is not willing to give up so many food groups. Re the hair, it could be the stress.....happened to my daughter in her teens, she was bullied at school. Occurs periodically even now.

[j4xny]

It sounds as if you are both having a difficult time lots of hugs to you both. There is one thing that you should really consider and that is a chronic vitamin D deficiency.

Vitamin D deficiency even though easy to test and easier to treat is frequently misdiagnosed as chronic fatigue, fibromyalgia, even the onset of arthritis.

Hair loss is a strong indicator as is joint, bone and muscle pain, chronic tiredness, and depression, left untreated it eventually leads to osteomylacia. Vitamin D isn't really a vitamin it's a hormone precurser and as such women nearing the meopause and teenage girls are at particular risk. Your body can not synthasize (make) vit D on it's own and you can not get enough from a normal (or even a healthy) diet as apart from oily fish the only source in a western diet is food specially fortified with it. Your skin can make it IF enough of your skin gets enough (sensible) sun exposure, as long as you are young enough _ the older you get the more difficult your body finds this to do and the average teenager spends less than 20 minutes outside each day, factor in wintertime, heavy clothing, poor weather ..... and well you can see what I mean.

SUN BEDS ARE NOT AN OPTION FOR TREATMENT, oral vitamin D in a chewable tablet with calcium are available over the counter, get them and use them but get her tested too. Under 50mmols indicates a deficit, but there are people walking around EVERYWHERE with much lower levels, mine was found to be 35mmols. Taking the supplement improved energy levels and mood so quickly I was shocked, the aches and pains take longer as your body has to rebuild the poorly built tissue and bone, but if it has the right materials your own body will fix it.

I hope this helps.

Jane x

[peachieplum in reply to j4xny]

Thank you so much for your reply to my post, she has been tested for vit/D but all game back clear but I may have to go back and check again, thank you x

[Hidden]

Please let us know how you get on regarding your daughter. She is certainly going through the mill at the moment poor soul. See your GP, mention all her symptoms and hopefully she will be given the right treatment to feel better or a referral, which in my opinion I think is the best course of action at this stage.

Wishing you both all the best. Take care.