Lupus sle Fibromyalgia.

[Loopy-loo]

Hi All,

My first question on this site.I have the above conditions, Fibromyalgia for past 12 years and Lupus 18months.I have been having really burning sensations in my feet and finger tips which is now moving to my arms and legs and is worse when resting or sleeping ( that's another story ) I have had nerve conductor tests which have come back normal. I am not sure whether its related to Lupus or fibromyalgia? I wondered if perhaps I should see a neurologist. I really dont know what way to go at the moment.Has anybody been to Guys Hostpital as I believe that they do have a fibromyalgia clinic. Maureen x

[jolow]

Hi, I too have other conditions aside from fibro i do not have lupus.I too have had normal nerve conductor tests results yet i get loss of sensation in feet and hand also have raynuards which gets the blame my fingers just shrivel up like they have been in water for a long time they go numb ,this happens even in warm weather up to 10 times daily sometimes more .They also get quite itchy at times as do my feet thankfully(have pain mainly in left foot for past few weeks though) i do not have burning in either toes or fingers so maybe more connected with fibro than anything else? not much help i'm afraid but my point is that a lot of people on here have various symptoms in hands and feet so try looking into this on here as i am sure you may find others with same symptoms,Good luck x

[Loopy-loo in reply to jolow]

Thanks for replying Jolow,

I have just spoken with my doctor as yesterday I was seen by a Vascular Consultant who thought I should perhaps be referred to a neurologist. Luckily he has agreed to refer me. I was told at the of last year that it could be Raynauds but that has been discounted as the cold doesn't affect the symptoms I am having.My fingertips shrivel up as well but the pain and burning are worse when I relax or try to sleep. I will keep you posted with the outcome. Keep well. x