I`m Back :): Hi everyone I`m back. Been... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I`m Back :)

sadoldred profile image
6 Replies

Hi everyone I`m back. Been off for a few weeks. As some of you will have read about someones attitude towards me having Fibro. But now my head is sorted and getting rid of bad rubbish is good! Hope everyones good? Well as good as you can be with this Condition? Have lots of questions but will be back on tomorrow! So nite for now Annnie :) x

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sadoldred profile image
sadoldred
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6 Replies
julieevh profile image
julieevh

Good to hear from you Annie, so pleased you have cleared your mind about that plonker!

Julie xx

Petra profile image
Petra

Great to have you back on board.

So glad you have come back and interested to hear your questions as I usually find the answers useful for me too x

Bev95 profile image
Bev95

I read your original blog Annie we all have different levels of pain...and just because you might look ok does not mean you are. That so called friend should of known better and maybe should learn some tolerance. I wonder how they would feel if they had the same condition...we dont ask for this to happen to us it does..I was diagnosed years ago and yes I have better days than others..I call them different levels and we all have those where the levels of pain we can handle with pain relief and some we cant...I have learnt to live with those..I have no choice. But what I say to you is I think the person who said was your friend I would drop like a ton of hot bricks...you dont need friends like that! If they ask why then be truthful and tell them...maybe they might 'put their brain into gear before making sweeping statements' of a subject they clearly no nothing about! How could she know until they experience the same pain we all go through each day...and goes from moment to moment..! You have friends here who do understand....so dont let them get to you...Just ignore them and treat them with the contempt they clearly deserve! Hugs :)

Sthandra profile image
Sthandra

Hi I'm still new here so if you think I'm butting in where I don't belong just let me know, I didn't get to work much as I had my first child when I was 18 my second at 20 and last at 21, by the time my youngest was 3 I had been diagnosed, some of my so called friends would pop round for a cuppa, I had a cage thing around my kettle just so I could use it SS called it a kettle tipper well that's what you did with it anyway I digress, when I went to make it they would slip out and I would be left looking after their child or children, when they came back for them several hours later they would say “I didn't think you'd mind”, I wasn't married then and my boyfriend, sounds silly calling him that he was after all a grown man who is 8 years older than me, I digress again he was at work so I was on my own with anything up to seven children to look after 2 being mine, my eldest was living with her father I went into hospital to be sterilised after my youngest and he pulled a fast one me “oh don't you worry I can take her till feel better” next thing I know he's filed for custody and he won she was 3 things went ok til she turned 4 then it was she's out with her auntie, or she's out with her grandmother, or her dads taken her out, or she wasn't well, strange how it only happened on my access day, I had friends who lived near him so they kept me posted as to how she was I didn't see her for 2 years turns out they told her I was dead anyway I'm digessing again. My now husband was still living at his mum and dads and as I said he was working there were days when he wasn't so he could come over in the morning they didn't try it when he was there the youngestwas only a baby and the oldest was 7 or8 mine knew something was wrong with mummy so did what they could to help as did the other children I'm just glad that they had known me since they were babys or they might have tried to test me they already knew how far they could push it, so I had a few conversations and laid it out 2 choices quit taking me e for granted or lose an evidently valued friend they came around to my way of thinking, I have since moved so do not see them much and.have fallen out of touch with others as they have moved away. Also I have noticed people looking at me when I use my wheelchair or my scooter, the looks seem to convey what's she doing in that chair or on that scooter she don't need them there's nothing wrong with her, for years I have felt self -concious then one day I thought what the hell only with stronger words and I don't tend to swear if I can help it what the hell do have to feel self- concious for I know I have a valid reason for using my wheelchair or scooter so I now think to hell with them and give them a big smile and let them make of that what they will. Well I have taken up enough of your time.

Good to see you back with us Annie, we're all here for you! :)

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